Previous post: www.jostrust.org.uk/node/11915
Posted - May 2012 - Sept 2013
I just wanted to pop on and share some good news and hopefully provide some hope to anyone diagnosed with mets or recurrence.
My hisotory is below but as a short summary I have undergone chemo radiotherapy June 2010, a pelvic exenteration Jn 2011 and then was told that my cancer was back and had spread in May 2012. It was now in my spine, shoulder and lymph nodes in my chest, pelvic aorta and spine, I was told that I could not longer be cured and the best I could hope for was that the disease could be controlled but that my life expectancy now was 12 months to 2 years if I was lucky. I was devestated.
I started on a trial called CIRCa but due to my sensitivity to the drug I was taken off the trial and continued with the Carboplatin and Taxol that I was taking in conjunction with the trial drug or placebo. I started palliative chemo in June 2012 and I finished it mid Oct 2012 after spending a few spells in hopsital with infections and which resulted in delayed cycles. I was scanned every 2 months as part of the trial and I continue to do so, my body responded to the treatment and by the 4th cycle the lymph nodes had resolved and the bones in my shoulder and spine showed signs of healing.
I finished treatment 11 months ago and my latest scan result shows that I am still stable. Although it never goes away and I am realistic that the cancer will return one day I live for life and not for death, I do think of it, of course I do but it is a minimal part of my life at the moment whilst I am doing well and until I need to think of it in any other way I will continue to live.
I hope that this provides hope to anyone who has heard this news as some ladies do respond to treatment and can live with cancer like a chronic illness. How long for I don't know but I plan to remain positive and raise awareness for as long as I can.
I hope that those of you going treatment are responding well with minimal side effects and for those of you who have finished treatment try not to get bogged down on recurrence or mets, I know it is hard but don't spend any valuable time in dread and sadness, enjoy every moment.