Hi all, firstly I’d like to say how brave and amazing all of you on this forum are. I’ve been lurking around for a couple of weeks and have finally plucked up the courage to post something now as you all seem so knowledgable and strong!!
I am 27 and have stupidly never had a smear test. I had my son when I was 24 and ignored all the letters inviting me to a smear. For some reason, I forced myself to book one in on and went for the screening on the 26th Oct. It was quick and easy and I felt so stupid for not doing it before. I had a small bit of spotting after the test, the nurse said she could tell my cervix “wasn’t happy with it” because it was bleeding slightly after she took her swab.
I received a letter on the 6th Nov from my hospital saying my results had been returned as abnormal and that I needed an urgent colposcopy, the letter said I should have a leaflet enclosed explaining everything but just my luck- they hadn’t enclosed the leaflet… Cue mani googling which was very bad for me!!. I received another letter on Sat 7th Nov saying my colposcopy was booked Monday the 9th Nov at 9.30am. VERY quick, and I’m very lucky as from what I’ve read some of you had to wait a while for yours.
I arrived at the hospital on Monday and had a sort of pre-meeting with the doctor who was performing the colposcopy, she said my results had come back as high grade changes and that this could mean cancer and that she thought she may need to perform treatment there and then. She took me to the room and there were two lovely nurses who really put my mind at ease, the doctor carried out the colposcopy and confirmed she had to carry out treatment and also had to take a biopsy. I had to have a local anaesthetic so I can only presume I had the LLETZ. After it all and I’d got dressed, the doctor said she’d had to take a larger biopsy than she thought she would as it was over a larger area (which is why it was painful- it was!), that she didn’t see anything too bad but that she couldn’t tell me anything else. She said I would get my results within 2 weeks.
I was in a bit of a daze and couldn’t really think of any questions to ask apart from “the first letter I got said I should have had a leaflet with it but I didn’t get a leaflet so have no idea what’s happening!!” The lovely nurses got me a leaflet about LLETZ, told me to go home, stop googling and get some rest!!
I am now in complete and utter limbo, I haven’t been told anything about cin1,cin2 etc I have no idea!! Do you think if she had any inkling it was cancer during the treatment, she would have told me??
I have cried almost every night since it happened, I can’t bear to think of leaving my son and my husband. I know we’re all in the same boat here but nobody I know or have told has had this so I just feel so lonely!! Any help or advice would be really greatly appreciated…