Still Experiencing Pain...

I am wondering if anyone can advise…I had a colposcopy on 12th oct and had lletz at the same time. The first day I experienced quite sharp pains and discomfort and now 10days post I am still experiencing dull achy pains on that area as well as in my lower back…has anyone else had this?

I had a bit of bleeding but now changed to a watery pink discharge which I believe is normal but I thought the pain would have gone by now so starting to worry slightly.

Thank you for any advice xx

Hi there, I'm 18 days post lletz an I keep getting stabing pain and cramps I was the same had them for a few days after then they went then came back, iv not had any blood Yet just pink water and brown water and now it's stoping then starting all different colour, pink, brown, yellow orange ish. I have no smell or temp or worse loss so I don't think it's a infection Mine started about a week ago and have been the same pain since. I think it Is pretty normal. X

Hi Elliebelly

Thank you for your post. i am exactly the same some days it's worse than others. i haven't got a temp or bad  it's just the aches and pains.

are you still waiting for your results? Xx

Hi,

I found I still had pain for a few weeks post op. Especially when I stood alot. Must be when ur stomach muscles are working it affects that area which is still healing. 

Hope u heal up fast. I avoided baths, swimming and intercourse for a full 6 weeks.

 

Hi, yes I'm still waiting it will be 3 week on Tuesday. I have actually found the waiting the hardest part. I also found like MelanieM said when Im stood it is worse, do you know what cin you have? mine is 3 and im quite scared about my result. 

I completely agree with you  waiting is horrible. i was fine for the first couple of days to a week because I knew I couldn't get a random call as the results wouldn't be back but now it's 10days I know potentially the results could be back so any phone call I get anxious and any letter I get I'm nervous to open. I help telling myself no news is good news but I know that's not always the case.

I actually have severe cgin (cgin is in mild, moderate or severe so technically I am level 3). i only found out I was cgin from the letter from my consultant to my doctor, the consultant didn't explain that part to me during my appointment just said it was high grade severe and I needed to have it removed today.

my letter also stated that I have abnormal vessels which was not mentioned to me at all.

i was asking myself how could my smear results change so dramatically is 3yrs then I read with cgin it is very rare that it is picked up on a smear so now I am thinking what if I have had it for a while and it has already developed to cc (cgin is harder to find and treat as it sits inside your cervix instead of on the surface and can be very deep).

would just like my results so I know what I am dealing with! Oh I also have endometriosis so over the last ten years anything funny in that area I put down to that and now I am thinking what if it was actually cc. 

Sorry I didn't mean for this post to turn into an essay...but I find it so reassuring and comforting to talk to people on here as although my family and friends are supportive I know it is also hard for them and I don't want to keep bringing it up and upsetting them.

xx

I know what you mean it's always nice to talk to people who have or are going through it and understan, my dr is the same he didn't expl anything he didn't even mention cgin so I don know if I do have that or not he just said cin 3. I was going to my drs for months with stabbing pain and cramps and they just said its ovulation but now I'm thinking the worst an that it was this. My smear came back fine no hpv 3 years ago and now it's this. I don't know if it's my body play up but I keep getting like a strong almost contraction like feeling on one side of my cervix it feels like and it makes all my legs go to jelly, that's a new one after a full day of no loss then today it all starts up again. It must be hard with endometriosi, sorry you habe this on to. X

Oh gosh sounds like we are very much in the same boat. It will be two weeks on Wednesday and the waiting is driving me mad - it seems the longer I wait the more I think about it. i feel emotionally exhausted so have dwcod d to have Thursday and Friday off work to try and relax.

how are you doing with the wait? remind me again when you have your colposcop? C

Hi ladies, I had my lletz treatment 4 days ago for high grade CGIN, last smear in April 2014 was clear.  having the same thoughts you are all having as I've had abnormal spotting between periods for 3 years now.  My dr actually told me I had cancer, twice he told me, first over the phone then when I had to go into speak to him face to face about results.  Colposcopy just said we don't know if it's cancer so now I just sit and wait to hear.  

Ps when you had your colposcopy done did they give you any indication of what they were looking at as I was told by the nurse they would give me their opinion when they did it but they said nothing to me, just that they would push the biopsy through as urgent. 

hi Sillyname79

sprry to hear you are also experience what we are going through. Firstly what a naughty doctor telling you that over the phone some of them really don't have very good bedside manner....what indication did he have to say you had cancer? Did you have some tests before the colposcop? Or was it just a smear?

i had a smear and just got a letter saying they found abnormal cells and that I had been referred for a colposcopy within 2 weeks. When I go there the consultant told me it was severe and it needed to be removed which I opted for. Then I got a letter from consultant to doctor informing them what had happened and it was only then I read that it was severe cgin. They didn't say anything at my appt but I couldn't remembered the questions I wanted to ask. now I am waiting and it's horrible x

I had a smear test, rang to find out if results were back on day 14 and was told they needed to be seen by the dr and that he would ring me.  Anyway over 2 days I kept missing calls from him but finally managed to speak to him on Friday.  He said that the results showed worst type of cell changes, the glandular type then proceeded to tell me that the cancer was responsible for my bleeding.  He then insisted I come in to see him and go through it face to face.   My letter arrived the same day but I didn't get it until I got in from work, it was my smear results and an appointment for treatment biopsy in 6 days.  The result at the top just said high grade cytology result so I was non the wiser.   went to see him Monday and he basically repeated what he said on the phone, I asked him what the smear actually said and he said gladular cancer.  told me that it was very important that I attend all of my appointments for this.    Roll on Thursday and I'd been trying to speak to someone at colposcopy all week with no luck, even after leaving messages.  when I got to my appointment I told the nurse that the dr had already told me it was cancer, she checked my notes and said that they didn't know if it was cancer as it says AIS which said is known as HG CGIN.

 

i was told before the actual colposcopy that they would be taking a 1cm deep cone as they needed to get the area that can't be seen visually.   She made no indication if it was severe or not. Nothing at all. 

The waiting is horrible, I also feel like they aren't being completely truthful with me which I don't appreciate.  

I know its hard to believe what they are saying but you have to try and remember that they will do all the checks and be sure before confirming anything as it isn't worth their while to do anything else. Having said that I would believe the nurses over the doctor as they are more likely to specialise in that area. 

i also feel that they are over protective of what they tell us while they are doing the tests and would rather keep it vague before giving too much detail.

i know it's bad but I have googled a lot of my questions or used this forum to find more answers as it seems to. E the best option x

I know what you mean, I have done exactly the same thing, I've read so many medical papers and documents relating to standards and practices to get my head around it all.