Am after some advice....I completed treatment at the begining of March. I was told that my team dont offer follow up MRI/CT/PET scans to confirm treatment sucess as statistically it doesn't improve life expectancy despite its wide use by many other hospitals.
I accepted this and do trust my team however at the 'Lets Meet' every other lady I met had been given a scan and it did seem to offer them some peace of mind.
At the very least I wanted a base line scan so that should any reoccurance appear they would have something to compare against post treatment. The only scans ive had were staging scans pre radical hysterectomy (which i paid for privately) and positioning CT scan during Brachy.
I have since pushed back on this and despite my onc telling me verbally over the phone that she would give me one, I have now rec'd a letter refusing and re-stating their original position. The letter also says that they have in fact dont a CT scan post treatment (positioning scan during brachy) and it is this that they would use as a baseline scan if necessary.
The trouble is that before the start of treatment my clinical onc told me that any scans taken within 6mths of treatment are useless due to the amount of fresh scar tissue. So how then can they use my Brachy scan as a baseline scan as this was 'during' treatment!
This seems to be backed up by the ladies I spoke with at Lets Meet as most had to wait some months until their scarring had settled before they received their scans.
Although 'most' reoccurance is picked up through pelvic exams, not all are and whilst I understand proceedures are laid down on the basis of proven statistics, I was under the impression that they are supposed to treat the individual, not the statistic. Afterall aren't they supposed to treat both the phyiscal and mental effects of cancer?
I am left feeling that I am not getting the same access to treatment as other cc patients and this cannot be right...right??
Any advice appreciated.