Firstly I'd just like to start by saying I found myself in CC club just over 4 weeks ago now and without reading these forums I dont think I'd of got through it all how I have done so thankyou.
So heres a quick break down of my journey so far
31st may unable to feel coil strings and notice heavier than normal discharge, call the gp who arranges apt with nurse following day. Nurse can not detect coil strings and notices inflammation and advises referral to colposcopy.
Colposcopy apt made for 5th June, which I attend completely oblivious to what I may be facing. It was here I first heard the word cancer! But still led back allowed them to take some biopsies and kept in my little dream world that its all to find my coil.
Tuesday the 9th june I get a call asking me to return for results the following day ....at that point my world came crashing down, my bubble popped and I knew instantly we were no longer discussing my missing coil.
Wednesday 10th June my results....the words I have to tell you the biopsy shows you have cancer of the cervics...its always something you imagine happening to other people, or watching on TV, but never do you plan to hear it in regards to yourself. Obviously due to covid all this was being faced on my own, but I have to hand it to the drs and nurses they have all been so supportive and nothing has ever felt to much trouble.
The next week was definitely the worst, I had my MRI a few days later and awaited the MDT to stage and plan my treatment. This page during that week was my saviour knowing I wasn't alone, the anxiety the tears the stress were all normal....it really did help me get through it
Day of the MDT I decided to have a little drive out get a macdonalds sit in the car all with my mum and 15 Yr old daughter trying there best to take my mind off things and pass the time as quick as possible....then it happened the call.....i had been staged at 1b2 with no clear node involvement and clear margins...it was a positive outcome and I finally felt I could beat this
So last Wednesday 15th July I had my radical hysterectomy, including lymph node removal and due to a few complications (endometriosis near the spine) the op overall took 5 hours. I feel like its been the toughest week of my life, I've hd blood pressure amd temp issues which has e my stay in hospital slightly longer but finally got home last night sporting my lovely catheter for a few more days.
I always knew surgery would be tough, but I dont think I kinda understood how tough....6 days post surgery finally got the strength to have a shower but still really struggling on my feet...is this normal? The pain is totally under control whilst I'm led down....it really is only when I go to move around it litterallytakes my breath away. And wow the exhaustion...thats a whole different level...my pattern is currently eat, tablets, sleep, eat, tablets, sleep.
Guess I'm looking for reassurance that all this is standard and its normal as normal can be haha...
Thanks for reading