I got my results this morning after a week of waiting. Still in shock.
I have a mass on my womb and cancerous cells and precancerous cells.
MRI has been rushed for this Sunday. Treatment will be discussed by specialist team next Wednesday.
Any advice on how not to fall apart and remain optimistic would be really helpful?
I'm only 32. No kids but newly married
Thanks in advance
Hi chelle
So sorry to hear your news. I don't have experience of the same news but I can recommend Jo's helpline as a place to turn to if you need someone to talk to. Has your hospital assigned you a clinical nurse specialist? They would know about your individual circumstances and diagnosis and be able to support you on your journey. MacMillan has a nurse helpline open between 8am and 8pm every day also. There are other ladies on here who have experienced a cancer diagnosis and will understand how you feel and I am sure they will reply to this post. A common thread is that the waiting for tests and diagnoses is the hardest part - it's the not knowing and imagining the worst. Once you have facts and a treatment plan you know what you're dealing with. Your doctors and nurses are experts in their field. Apparently keeping busy helps. Big hugs
A x
Hi chelle8822!
You can't completely get rid of your worries and fears. It's okay to worry. Think about what you need to get rid of the disease and how to do it .
We need to wait for the results of MRI and other tests. I advise you to explore treatment options on professional medical resources, this will help you better understand how it works and which treatment option is best to choose. You need to try to get enough sleep and eat right. Cancer treatment is not about taking vitamins. Cancer treatment is incompatible with panic. You need to accept the situation and start consistently correcting it. I hope that the situation is not so serious and that your treatment will be minimally invasive.
Hi Chelle,
So sorry to hear your news, I too have just been diagnosed with cervical cancer after having Lletz treatment to remove the abnormal cells found on the colposcopy where they found some cancer cells. That was 2 weeks ago and I have had a CT scan yesterday and my MRI scan is in 2 weeks. Just waiting for the results now. I too am 32, no kids and really worried. :(
Hi sorry to hear about your news, have you heard anything more about treatment yet?
I got my results 2 weeks ago that I have cancerous cells and pre cancerous cells on my cervix after finding it on my Lletz treatment. Ive had about 3 biopsys this year, which were all inconclusive and they downgraded me from severe to moderate in July. I have just had a CT scan yesterday and my MRI is in 2 weeks, really scared too as I'm only 32 with no kids. Came as a big shock to me, but I'm trying to stay sane by going for long walks and listening to a podcast, Its the waiting around for the results that the hardest bit for me.
Hi Chelle,
I’m really sorry to hear that you have found yourself in the club nobody wants to be in. It’s rubbish. You will be in shock, which is a usual response and my heart goes out to you. It will be a whirlwind of new information, tests and results that feels like a rollercoaster.
You have to do what feels right for you and what you think you need to do. I needed to know lots of information, some don’t. If you do, get it from reliable source like Jo’s and MacMillan.
Get support from your family and friends, but do it your way too. When you need to talk - talk. When you don’t want to - don’t.
The waiting is the worst, while you get scans and tests.Its also normal to feel all over the place too, so however you feel, be kind to yourself and put you first. What you need right there and then goes.I continued to work, which distracted me , but everyone is different.Once you know what you are dealing with it is somehow easier to face.I started eating healthier and doing more exercise so I felt like I was doing something about it. I also had days where I did nothing but wallow. You need to do whatever you need to do. There is no hard and fast rule other than be kind to yourself.
They get things going quickly- I had my MRI within days too and it went to MDT within a week. It’s normal for the medics to get on with it and it can feel a bit overwhelming as one day you are not on this journey and the next you are. We have all been where you are and know how this feels, so please lean on us and reach out. The ladies on here were a fantastic support and it really did help.
You will get through this and we are here for you. Big hugs xxxxx
What a shock! It really knocks your legs out from under you. I can't think of a single thing to say that will take the fear away except you're not alone and everyone here shares it with you to some degree.
My diagnosis is very different, early stage, and I'm waiting for a hysterectomy so at least I know what's coming. This waiting is hell, your imagination runs amok and logic deserts you. I'm so lucky my employer (which is a health focused charity which probably helps) has been wonderful and very understanding and supportive, so I hope your circumstances are as full of support. Find it if you need to - someone just to wrap their arms round you while you cry. If your new spouse need support s/he can also get it here. it's terrifying for other halfs as well - my hubby had a cancer scare a few years ago, on his scalp, I thought he had skin cancer and I was fighting to hold myself together to support him while I was terrified I'd lose him. So tell your other half to get support to so that s/he is standing on firmer ground to support you.
I've been very public too, told all my colleagues and friends, because I couldn't face the awkward silences when I was trying to avoid subjects or embarrassment if something found out and wasn't sure what to say, so I just talk about it in the same terms as if I had a cold. But that suits me - it's not a general piece of advice. The important thing is to feel able to say how you want to handle it and who you want to tell. It's one tiny thing you have control of in a situation where you feel totally powerless and out of control.
My sister also got me to join a mindfulness course a friend of hers was running, and I didn't really want to but still the mindfulness has helped, last time I was in hospital waiting for another LLETZ under general anaesthetic, I was dragging out what I could remember and it did really help take the sting out of the fear. The teacher pointed us to these recordings which are free https://www.bangor.ac.uk/mindfulness/audio/index.php.en - if it helps all well and good but if not, there will be something in the world that's right for you - I hope it's helpful (you don't need to sit cross legged and chant or bing a bell! I don't)
This is a horrible horrible place to find yourself. I hope you get some really solid answers very quickly. And remember you're not alone! So come and cry on our shoulders too xxxxxx
Thanks so much for your lovely advise. I have had my MRI now but due to the pandemic my CT has been delayed so in limbo at the moment with no further updates for you all.
It's such a great support to have people who have similar experiences to come to for advice and support. I thank you all so much xxxx
It's entirely mutual and I have everything crossed for you. And being completely selfish, when I read posts here from women and I can say something helpful to them, it helps me, it helps me feel less powerless, so I hope you get the same boost. This forum has been something of a lifeline for me, I've had so muh useful info from the website and encouragment and support from everyone here. We're in this together xxxx
Just to keep you all updated I have had a lot of appointments in the last week or so.
I have been staged at 2b with evidence in my ovaries so was given the option of egg collection due to not having kids yet but was advised it would be difficult due to one of my ovaries being severely diminished. Toughest decision I have made was to not proceed with egg collection and proceed with my treatment which starts on Monday 14th. 5 1/2 weeks of chemo (cisplatin) once weekly and radiation daily. I now have my "tattoos" and am ready to get this all started.
I will then have brachytherapy which will be arranged after.
I'm slightly nervous but eager to get started.
I wish you all luck in your journeys and will keep you updated xxx
