Hello all! Newbie here. I need to vent to someone who understands what all this is like, so I apologize in advance for the long ramble. Here is my story.
Early 2011, I started having bleeding during sex. I went to GYN for work-up. Pap was normal, no HPV test done. Dr. was worried I may have endometriosis, so she did hysteroscopy and biopsy (all clear). She just chucked my bleeding down to having a "sensitive" cervix. Told me not to worry, so I didn't.
2014 I went in for my well-woman visit. Told the new doc (I am in the Army, so have new providers every few years) about my ongoing bleeding and that I also was developing pelvic floor cramping during runs. Pap was normal, no HPV test done. New doc says, "Well since your pap is normal and you were worked up 3 years ago, you are fine. The cramping is probably just dehydration, and you have a friable cervix. No big deal". So I didn't worry.
May 5th, 2017- Next well -woman. New doc again. Explain everything all over again. All symptoms still present. New development since last visit is now my menstrual cramps are getting worse (wake me up at night) and bright red bleeding. This doc is worried. Scheduled for colpo even before I get my results back because she could see a visible lesion on my cervix at the time of the pap. Pap- ASCUS. HPV- positive.
May 31st- Colposcopy done at GYN specialty clinic. Dr doing the colpo tells me not to worry because this is only my first abnormal pap. I tell her about my symptoms and she tells me I just need to go on birth control pills. I ask her about the lesion on my cervix, and she says it's probably just too much estrogen in my system causing ectopy. She takes biopsies and does ECC.
June 2nd- Onco GYN calls me with results. Biopsy CIN3. ECC positive CIN3. LEEP scheduled for June 9th. Now I am worried.
I completely understand that one abnormal result is not something to "get all worked up" about, as your body can clear mutated cells on its own. But I have been having abnormal symptoms for 6 years that every other provider has ignored, just because my pap was clear. The ECC result is what worries me the most. What if I have had CGIN in my canal for 6 years? Paps do not go in the canal for screening. How does my pathology go from ASCUS to CIN3 in a month? I am very worried that every test seems to come back with a worse diagnosis, so what does that have in store for my LEEP?
Sorry to ramble, but I am sick of everyone telling me not to worry, and then getting told "oh, so there actually IS something wrong". Maybe it IS time to worry. So frustrating. Any words of wisdom from someone who has gone through being ignored over and over?