Newly diagnosed Small cell stage 3

Hi,

I’m new to this forum well the whole cancer subject as I call “cruella” now. I have just been diagnosed with small cell cervical cancer. The doctors have told me it’s very rare and aggressive, let’s say being told it’s a 1% chance of getting it and I’m in that 1% is slightly mind blowing! I have an appointment on Friday where I am meeting my new consultants who specialise in small cell. I’m in a very good head space I’m ready to fight, they have said they can and will treat this but will also go at it very aggressively. I’m 33 and my daughter turns 3 at the end of this month so as you can imagine my main drive is my daughter! As I know this is a very rare disease I’m just looking for advice on what’s
To come and just some reassurance that it can be beat even though like I said there is no other option than beat it! They have advised they will most likely be going down the route of chemo and radiotherapy as they are unable to operate. It is also contained down there within the cervix/pelvic area scan shows no spread of disease in other parts of the body which I’m taking as a plus! I’ve been told they will treat to cure which that’s all I needed to hear but any reassurance or experience would be greatly appreciated as I am the first within my family and friends to ever have this happen. Thanks x

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Hi Lauren, I have PM’d you xx

Hi Lauren,

Sorry to hear about your diagnosis - you are indeed very rare (or special). I’m new to this forum too - I didn’t have small cell cancer but I had Stage 3 squamous - where it had spread into the lymph nodes in my pelvis and abdomen. I too was told it was curative. I’m now in recovery from the treatment having been told there is ‘no evidence of disease’ (NED). They were true to their word! For your own peace of mind, and especially being a young mum, you have to believe it’s curable, and every time you lie under that radiotherapy machine (blasting your pelvis and giving your bowels a beating as well as everything else) think - this is curing me! When you’re sitting with the chemo drip in = this is killing the cancer. It may be damaging me, but I will survive! The cancer will not! There is no other option, is there! Do everything they tell you to do. Take every procedure they offer. Know that there will be side effects and they may be very unpleasant - but the alternative is simply not tolerable. It is definitely a plus that the cancer has not spread. Hopefully some others on here will have had Small cell and can give you some positive experiences.

Jackie x

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Thank you so much Jackie! See I’m hearing so many good stories and positive outcomes! This is why speaking to others going through this helps so much! Well done in getting through it and smashing it xx

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Hi,I’ve been diagnosed with this type as well.Its very scary being the 1%.was wondering how you are doing? I havent started my treatment yet.Its so scary xx

Hi Debbie, I’m doing ok thank you. I’m half way through my first initial chemo plan so 2 out of 4 done and luckily I’ve been absolutely fine all way through upto now no symptoms at all from the chemo bar my hair thinning which I will take! I have appointment on 16th August with the gyne team which I’m guessing is the radiotherapy side so I will find out more about that then but on a whole tbh I’m good, feel better than I did before being diagnosed which is mad even saying but living a lot healthier lifestyle now and feeling better. How are you feeling? Silly question I know but I know I felt better speaking to people in same situation to myself. Have you been given any plan of action yet? I’m here anytime if want to message me or anything x

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Hi,thanks for replying.Im glad to hear your feeling well.Thats brilliant.My first oncology appointment is tomorrow.I am so nervous and anxious.Im hoping I will feel better after that.I had a letter which was sent to my gp saying my tumour is 6.7cm by 5.4cm.This terrified me,it sounds so big and I’m amazed i cant feel anything xx

Hi Debbiedoo

How did you get on at your oncologist appointment?

AMF

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Hi,sorry it took me so long to reply.I went on holiday and the signal was terrible.
My appointment went really well.I feel much more positive now.
I have to go for my pet scan on monday and have an appointment for the chemo nurse to speak to me and book me in.
I’m having 4 lots of chemo every 3 weeks,then radiotherapy then brachiotherapy.
I just want to get started now and get rid of it xx

Hope you were able to enjoy your holiday Debbie, and I’m glad you’re now feeling positive. That’s definitely the best way to approach things. Your medical team are experts in treating this and they can sort it. The PET scan is really important to tell them exactly where any malignancy is hiding, so they can target it exactly. You’ll get through this and we’re all with you in spirit! X

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Hi,
Glad to hear your appointment went well and you have a plan put in place.
Good luck with your treatment.

Take care x

Thankyou ladies.It means so much xx