Continuing the discussion from Newly diagnosed Small cell stage 3:
Hi Lauren, hope you get this message, I am not the best at technology of any kind:-) wanted to check in with you to see how things are for you? and whether you may have finished chemo/radiotherpy, has it been dual treatment.
Indeed very very rare, as is what I have gone through in Small Cell vaginal Cancer, there is little information, no leaflets etc, as due to rarity of these small cell types not enough monies to put into information, sadly through my journey I have never met anyone or heard of anyone with the same or indeed yours, how many session of radiotherapy and have you also had Brachy too.
I had near on 7 months of intensive treatment, mostly in hospital as the oncology hospital had never treated anyone as myself and type, so treated it like cervical but with “extra” sessions to give me a chance, small cell is very serious, it hides and tucks itself, sometimes the best scan to detect it is PET Scan, (expensive more so the CR and MRI) but I was told it is like the “rolls Royce of cars” so to speak. You are right by saying it needs to be treated very aggressively, after all it is upsettingly the worst type! we have to be Lioness’s for sure don’t we, sometimes in life we don’t get choices, and the impact physically and mentally can feel over whelming, and difficult when we cant chat with others with Small Cell.,myself I had dual treatment, both chemo and radiotherapy at the same time, I did have surgery first, was a massive shock and impacting, I had massive amounts of radiotherapy,which has absolutely taken its toll on my body and can take years to fully appear and side effects.guess we are all different in how our bodies react, I wish you the very very best, and hope you have an excellent oncology team as this matters.with kindness. Jane please post me how you are doing, thank you.