Recently diagnosed with high CGIN.
Had lletz but the results showed no clear margins.
A biopsy was took slightly further up and revealed as normal some good news.
Referred to a specialist who is concerned it maybe be cancer and that I might have to have a hysterectomy.
If it is just precancerous it will be a second round of lletz.
Any one had a similar diagnoses?
Hello I had LLETZ for CIN3 and CGIN I was told definitely no cancer found, no clear margins but on 3 months and 6 months check it was all clear. My gynecologist said that before they used to do hysterectomy very often for CGIN but now they also do conservative approach I think that is what she called it, so she said if I need it I could have a second LLETZ but she will not do a 3rd because of CGIN and my age 43 and already have my kids, Hysterectomy will be after 2 LLETZ. Also very close monitoring for quite a few years because of the CGIN. I hope my experience can help you, but I guess every person is different and treatment options may vary depending on specialist and each case probably not exactly the same. Take care
Hello Hop1 thanks for your reply I really appreciate it.
Just when I heard the specialist was concerned and wanted to send them to other doctors was like alarm bells.
Im only 29 with 1 child so I’m not sure if they were jumping the gun.
They dont seem to be in a rush to see me which makes it all very confusing.
I am in a similar situation and I am 29 too - my lletz and biopsy came back as cgin with no clear margin so I am booked in for a second appointment next week, it says for a further biopsy but not sure whether this will be lletz too. We also have one toddler and had planned to try for another baby late last year but obviously that had to be put on hold. I am really hoping that a hysterectomy is not needed but looking up cgin online and on here it does seem a common treatment. I hope everything goes well for you.
Hi Rainbow I hope it all works out for you too, of you remember keep me posted this site is so helpful its really reassuring
I got an appointment with specialist next week, I’m hoping they just do a second lletz and nothing major was found on the biopsy.
I really hope it all goes well for you and that they get clear margins 
Hey Rainbow
Just checking how did you get on or if you’ve had your appointment yet
Best of luck
Hi Butterfly,
My appointment is tomorrow afternoon so hopefully will know more then. How about you? How are you doing, have you had your appointment yet?
Thank you, I will let you know how It goes tomorrow 
Hey Rainbow, appointment is tomorrow also, hopefully we will both know more
Wishing you all the luck Will let you know how it goes too 
Ah that’s good news! Least we’re in it together so to speak.
Best of luck xx
Hi Butterfly,
Was thinking of you today, hope you’re appointment went well?
When I saw the consultant today he said there was a small margin that was not clear on my last lletz but he would think this had been cleared already with the cauterisation last time. However better to be be safe especially with the cgin so we went for a further lletz and this time it was a much bigger size (well it looked it to me!).
The consultant said he was very confident that he had gotten it all this time and he would be surprised if I needed a further treatment following this one.
We talked about my fertility and he did advise to wait for the results of this sample and then if clear try for another baby straight away just to try and ensure that my family would be competed if I were to need more invasive treatment in the future. He did also talk to me about second lletz causing increased risk for preterm birth and late miscarriage but said the risk can be looked at if I did fall pregnant and they would do everything they could to try to prevent anything happening like this.
I left the appointment quite hopeful however it is the waiting that seems to get the better of me so I am hoping that my worry doesn’t keep piling up the longer it takes. It was also really interesting to see how well it seemed to have healed since the last treatment 8 weeks ago.
Hi Rainbow
Was just thinking of you, your gonna find this very strange but I had the very same outcome as you
Told me that there was no clear margins after the first lletz 8 weeks ago and it should all be got this time that it was in a tricky place.
Seemed happy enough and asked about me was I having more kids and to wait until I was all healed and then complete my family.
Was told my results would be available in 8 weeks I left feeling like a weight had been lifted, I’m so happy things went well for you too
Amazing news!
Fingers crossed for us both
Hi,
Just wanted to update this post as I know it is really useful when searching topics!
Following my second lletz the result came back as CIN1 only and I was given the go ahead to TTC.
It took us a few months but we are now 20 weeks pregnant! I went for cervical length scans due to my history which were 4cm and 6cm (which is apparently above average even without cervical treatment). I have been told I need no further checks on my cervix so fingers crossed for the rest of my pregnancy.
Just wanted to give some hope as I know when I was diagnosed with CGIN I was so worried about my fertility as there was a lot of ladies having hysterectomies so I am very grateful this wasn’t the case for me.
I was pregnant by my 6 month test of cure so they have postponed this until 3 months post birth. Fingers crossed I get the all clear at this appointment.
