I haven’t posted in a while as I have been quite unwell. So I agreed to the ‘Belts and Braces’ treatment and started on the 8th of October. Easy I thought wow how wrong I was. The radiotherapy in its self was okay, my side effects didn’t start till about week 2, I have had problems with my bowels in that one min you have the runs, literally you get a chronic stomach pain and you have seconds to get to a loo, followed by days of constipation. This caused me to suffer with the worst case of piles I have ever had. I suffered nausea, some days I didn’t eat, and felt tired. I have also had 3 water infections too. At around week 3 I discovered a radiation burn on my inner thigh which couldn’t be treated as the treatment to get rid of it was liquid silver, a fantastic cream but as my burn was in my treatment area I couldn’t use it as the radiation would aggravate the silver in the cream.
The chemo however was a different matter, after the first cycle I became unwell, had severe sweats, and a severe water infection. Cisplatin also takes away your taste, within days I could taste nothing, strong tastes such as tomato ketchup left an acidic taste on my tongue and I went off tea. The hand wash in the hospital made me feel sick as it also affected my sense of smell. The 2nd cycle was omitted as I was deemed too unwell for it. On the 3rd cycle I became very unwell again, I had a severe allergic reaction, my face swelled and within hours my eyes swelled shut and I was covered from head to foot with a burning rash. I turned out that I had a 1/1000 reaction to a chemical in the chemo, the chemo was abandoned and I ended up with blood poisoning. On the day of the reaction when I became unwell I rang the ward at the hospital who told me to come to the hospital and they would have a doctor look at me asap. I went to A&E and was left for 4 hours in the reception, deemed not ill enough to be seen quickly I vomited and lost control of my bodily function, weeing myself twice. By the time I was seen I track and triggered a 7 (acutely unwell) and had a temp of 98.8. I was re-cannulated as my bladder stopped working and was admitted.
A scan was done on my kidney and on the right one it was showing a slight blockage, I was told not to worry as water infections can cause problems. The next day a junior doctor came to my bed, we were chatting, and I mentioned the scan, he then informed me that they had found another tumour and that it was pressing on my bladder, causing the problems……as you can imagine I fell apart, on my own he broke this news I knew nothing about, I cried and cried. The nurses didn’t know what had happened as nothing was written in my notes. Turned out he was wrong and that he had interpreted a CT scan wrong and in actual fact the ‘tumour’ is actually a small piece of scar tissue from my op.
Anyway my last treatment was Thursday, I am getting stronger every day, I felt I had no option I feel relieved and even though I had a hard time, I met others who didn’t. Gut instinct told me to do it, I made the right choice for me. But wow that was hard J