I’m looking for an bit of guidance really.
Ive recently been diagnosed with stage 1A2 cc and am worried that my treatment plan isn’t yet in place and that I’m not fully in the loop about what is going on.
by way of brief history;
i was called for colposcopy due to abnormal cells and HPV found in recent smear. At that appointment I was then told I had ‘glandular’ changes and they performed LLETZ there and then. That was a bit of a shock in itself but fine.
i was then called by the hospital to come in to discuss my results. They confirmed that they’d found cc and this had been removed in the LLETZ. However they’d also found high grade precancerous cells which would need a second LLetz for removal.
I attended second lletz just three weeks later and it couldn’t go ahead as my cervix was not healed enough. I was in excruciating pain while being examined. At the appointment I had many questions including asking if possible further cc could be found in my results: which the answer is yes, and also how they will be able to tell that my cancer hasn’t spread. I was then told I would be invited to have key hole surgery on my lymph nodes in time. This was information I hadn’t been given at my diagnosis appointment. However, reading other women’s experiences of similar stage cancer I am worried that I’m not being offered MRI, etc and that’s these answers only came about when I posed the questions. I feel very out of the loop with what is happening and where my diagnosis is. I would have thought a discussion about a possible hysterectomy would have taken place but all I’ve been been told is that at the moment the second lletz is part of their investigations and it’s too early to know my treatment plan and full staging. I’m so confused and don’t know where to turn.
Has anybody been in a similar situation and does it seem correct that I’m having a second lletz without discussion of other options?
Thanks in advance, this forum hasn’t been a huge help to me already.