I came across this group while googling (always a silly idea I know!) but I could do with some advice or other people's experiences.
I have just turned 25 years old so have just attended my first smear test.
10 days later I received a letter saying I had severe high grade dyksarosis (not sure on spelling!).
I was quite shocked by this but after some research I did realise this is actually more common & less scary than it sounds.
I attended a colposcopy appointment wednesday (17 days after my smear) where I had 4 biopsies taken.
The woman & staff were all lovely but I did walk away feeling very unsure.
She explained she was using a vinegar like solution to highlight any areas which basically turned everywhere white!
She explained it was quite extensive & was not only on my cervix but had spread to my vaginal walls & up through my cervix hence why she took 4 biopsies.
She explained she was referring me to a specialist hospital & I would hear from them once my biopsy results were back but I would definitely need an operation whatever the results were.
What has worried me is that she discussed some possible outcomes. She said some areas where pre-cancerous but there was other areas that would have to wait for the results. She then talked about outcomes such as being offered a hysterectomy & discussed cancer. She did say she was only mentioning these words as a worst case scenario & purely so I had heard this words already & wouldn't come as a shock if they are discussed with me at my next appointment with the specialist.
Now I'm abit worried & confused.
She never mentioned who this specialist is or what they can do so differently to her or why I needed to be referred elsewhere when I know the clinic I attended does the usual treatments as several friends have been there.
Had anybody else had these abnormal cells whatever they may be spread to vaginal walls & into your uterus?
I have had 3 children so I'm guessing she wouldn't of mentioned a hysterectomy if I was childless but it has left me wondering if she has mentioned this as she knows something she hadn't told me?
I know it is purely a waiting game but any advice would be appreciated.