Hi there, I was diagnosed with stage 2B just over a week ago after biopsy and high contrast MRI scan. I’ve had a PET scan thankfully yesterday & have my first appointment next week with the treatment team. I’m absolutely terrified that they are going to restage me. My consultant said he was “confident” from the MRI that it is all contained but couldn’t be 100% sure without the PET scan. I know they don’t use words like confident easily & I’m logically thinking he’s got 30 years experience & has looked at loads of scans so knows what he’s saying but my mind is in overdrive. I’ve been very let down by my GP & had a clear smear test in August & was told the pain I was experiencing was a vitamin d deficiency & menopause but I’m not focussing on that as I can’t change what’s happened. Anyone else at the same stage or been through it? X
Welcome to the forum. Hopefully your pet scan will confirm what your surgeon thinks. It is good that they do all the tests to be sure but it’s hard for us to wait for the results! Once you know your treatment plan I’m sure you will feel much better.
I’m sorry about your experience with your GP. I also had normal cells on my smear tests including just one year before my diagnosis of stage 1B1 cervical cancer!
I’m sure you will hear from others who are going through similar to youxxx
Thank you so much for replying, it really means a lot. You’re right, I think I’ll feel better once the treatment plan is in place and I know everything has started. The waiting as everyone knows has been the worse few weeks & every twinge, ache, spasm sends me into a spin. I hope you’re ok, and so sorry with what happened with your smear too. I asked my consultant how could it have been missed and he said it’s just one of those things. When I got the initial clear smear results I breathed a sigh of relief and thought well I can at least rule that out. Im focusing on Thursday & getting the plan & a start date now. Thank you so much again, Sending lots of hugs to you xxxx
I’ll be interested to see my smear test audit of all my previous ones. The good thing though is that my cancer was picked up this year through my smear test (HPV and borderline cell changes so referred to colposcopy and biopsy taken). So although it may have been missed previously at least it was picked up this time before progressing any further. I had not really noticed any symptoms! Although now I wonder if I just missed some!
I totally understand about worrying about any ache or twinge now. As soon as I was diagnosed I got really ill waiting for the results and I was convinced it was the cancer causing it. I had back ache, pelvic pain, fast heart rate, nausea etc! As soon as I had all my results and treatment plan all that went away! I think it was stress related.
I am out the other end now. I was diagnosed at the start of Sept, had my op in October and now recovering well. All cancer is now gone. My bladder is taking a while to recover but it gets better all the time. I’m 5 weeks post op.
You will get through this and very soon you will be out the other end of it all too. Good luck on Thursday. Sending hugsx
Awww that’s fantastic news! I’m so glad you’re recovering & it’s all gone! It’s so lovely hearing positive outcomes! I’m still getting some discomfort & pain but nowhere near as bad as it was before diagnosis! I think the relief of not thinking I was going bonkers and not knowing what is happening definitely played it’s part in the pain I was having! I don’t know yet but I’m expecting chemo and radiotherapy for treatment but it seems from other stories it’s done within a few weeks so just thinking past that! I’m wishing you a very speedy recovery & sending lots and lots of healing hugs xxxx
Hi Willow, I was stage 2b and treated November/December 2021 It was successful and I am still clear. I hope this gives you reassurance that you will be absolutely fine! xxx
@Sammy82 thank you so much, unfortunately I was restaged to 3C1 which sent me into a total spin, but I met with all the doctors, nurses and specialists on Friday & they have all said it changes nothing, they are aiming to cure & have a very good result with the treatment. There is involvement with a lymph node which is why it’s changed. I’ve had a planning scan and a start date of 11 December for 25 radio, 5 chemo and then brachytherapy. I’m taking the positives & the win that they think it’s curable! Just want to get started now! So glad you are ok, it’s so nice hearing successful outcomes xxxx
@Willow23 thank you I had the same treatment and met a lovely lady with stage 3c. We went through our treatment together and have remained friends. She too is still clear. It’s definitely curable and you will be telling the same story as me in another two years! Sending you lots of love and remember you are in good hands. I couldn’t quite believe it when the consultant told me they aimed to cure mine. I thought they were trying to make me feel better and telling lies! It’s true though xx
I’ve finished my treatment about c3 weeks ago for stage 3C1.
I’ve got a daily diary and round up post on the forum if you want a first hand account of what it was like for me.
3 weeks out I feel I have more energy (finally!) putting on the 22 pounds I lost between being told I had cancer and finishing treatment.
Mentally there is still work to be done but physically I am feeling better. That said as I ended up in hospital for 8 days due to neutropenic sepsis I am now being tested for blood clots. The red card teams really do take care of you if you have any reactions
Keep us updated xx
@Sammy82 you have taken the words out of my mouth, I didn’t believe them either, I was waiting for the catch! I’ve been back to the hospital today for the kidney test & they’ve all said the same too, so I’m tentatively beginning to believe them with my arms, legs, fingers and toes crossed he he! Thank you so much for taking the time to reply, it really means a lot to me! Sending lots of hugs xxxx
@Justpeachythanks thank you so much for replying, I think Ive read your treatment diary about a 100 times over the last few weeks. It’s been an inspiration, and I am so so happy that you are through it and on the mend! I will definitely keep you posted on how it goes. Thank you again, I’m sending lots of hugs to you xxxx