After 6 months of tests, procedures and results - am finally feeling the need to reach out.
I had a smear test in October 2013 which I was told was clear, but in Jan this year, received a phone call to say it wasn't! Have had two explanations - one that it was routine re testing, the other that the person who did the test was borderline in perfrmance and hence the re-test.
I had a coploscopy at the end of Jan - where severe glandular neoplasia was found , a LLETZ under local in April, referred to MDT, then 2nd LLETZ under general in June - I have now been told I am being referred to MDT again as still evidence that not all removed
I am not sure what happens next and what the options are - and my normally get up and go positve self is starting to crumble - has anyone else had a similar experience?
really would appreciate some support ladies - I really do mean it when I say I'm starting to crumble - and thought this forum would help - even if it's a note to say I know what you are going through!
Really sorry to hear you are having such a hard time. You are not alone though and this Forum is great at supporting. I guess noone has answered you yet as they don't have the answers - which is hard but is the same for many of us.
I have only been through one Lletz treatment so far recently for CIN3 and am very nervous of receiving the results but I have no option but to wait and see. I try to tell myself that worrying won't change anything but do feel a bit that life is on hold currently.
My experience is different to yours but try to rest assured that you are being checked out now and hopefully it will be nothing to worry about and any abormalities they find can be easily dealt with.
Really sorry you're going through this, the waiting is horrendous isn't it! I'm afraid i don't have any experience with glandular neoplasia so i'm not sure i have the answers you're looking for but i can share my experience. I found out a couple of weeks ago i have very early cc and am booked in to have a cone biopsy to hopefully remove everything early august. I have been really positive about everything up until the last couple of days where, like you, i can feel myself starting to crumble. The lengthy process of it all is starting to take a toll on me and i'm so tired all the time. I'm not scared as such because i know i'm in very good hands and the doctors have been fantastic, but selfishly i'm just finding myself thinking you know what, i don't really want this to be happening anymore! I'm hoping i'm just having a rubbish couple of days and the positivity will return soon. Try and keep your spirits up and keep posting on here :) I wish you all the best with the next bit and fingers crossed we can all move on with our lives soon enough xxxx
Sorry to hear you're going through a hard time - I'm waiting for results too (for lletz treatment), hating this entire process, it's literally the most stressful period of my life to date.
I'm not sure what severe glandular neoplasia is.. What were the results of your lletz treatment or are they not sure?
I had a smear one year ago that was clear, then in January this year I had a smear with abnormal changes, (mild dyskaryosis) and high risk HPV. I was booked for a colposcopy and a biopsy was taken. This was inconclusive so I was advised to come back after 6 months. I had my 6mth colposcopy and smear last month and this time moderate changes but the biopsy was again inconclusive. The doctor advised lletz treatment so I had this last week and am now having the anxious wait for results. I go back next Friday and it feels like an eternity to wait. It's simply horrid. I guess it's natural to fear the worst although we must try to remember that this is all done in precaution to avoid cervical cancer. Fingers crossed that all will be okay xx
Aug 2013 - turned 25, clear smear result
Jan 2015 - smear taken as part of routine 'full body' health check-up - results show HPV 16 high risk, and CIN 1 confirmed
Jan 2015 - colposcopy, CIN 2 confirmed, biopsy taken - results inconclusive, return in 6 months for another colposcopy
July 2015 - 6 mth repeat colposcopy - abnormal cells seen, biopsy taken, and smear
July 2015 - smear results show HPV 16 moderate changes, biopsy result inconclusive (again) - lletz carried out.
Awaiting results, due in 2 weeks
Sorry to hear its been so difficult. I have had a similar experience. 2 procedures back to back, due to high grade CGIN. Afterwards I had lingering minor abnormalities for a few years, but now they are confident I'm high-risk HPV free and am back to yearly check-ups instead of 6 monthly. The very minor low level lingering results are probably due to low risk HPV and they don't see that as a concern. Apparently, it can take some people longer to clear it. Demand they HPV test you as it helps make the situation clearer.
If its any reassurance, mine was severe and very extensive, but they did get it in the end and it didn't progress to anything worse.
The Dr's always said to me I was in the best position....seeing them regularly so they can keep an eye on things.
Happy to chat if you have any questions.
Thanks Ladies - and thanks for the support - much appreciated - as with all of us - it's the waiting that's the nightmare! Next MDT meeting is on the 17th of Aug - so fingers crossed! Hugs S x