i’m new here and very new to all of this so as you can probably imagine, I am very confused and not quite sure what to think!
I had my very first smear in April 2017 aged 31 (I know, I shouldn’t have put it off for so long but life just got in the way and it never seemed that important, my God have I learned my lesson!). It came back with severe abnormalities so I had a colposcopy with LLETZ on the 1st June. The results from the LLETZ showed high grade (although I wasn’t told a number) CIN and CGIN with a small area of cervical cancer. I wasn’t told anything about staging etc but was told that they were sure they had clear margins so had removed all the CC. I was told my case would be discussed at the MDT meeting on Monday 19th June 2017 and I would hear back that afternoon.
The nurse who performed the LLETZ procedure said I had nothing to worry about as the cancer had all been removed so the doctors at the MDT meeting would probably just ask for a repeat LLETZ to be performed but she would contact me to confirm.
I’m a little confused as, after my LLETZ procedure I was told by the nurse that often, when cervical cancer is diagnosed, an op to remove the cervix (can’t remember what it’s called) or a hysterectomy are usually offered as the recommended treatment However she has now said this is not the case. I have never wanted children and I have had many problems relating to my reproductive organs over the years so, as odd as it may sound, with the added worry of CC I would far rather have a hysterectomy than risk the cancer coming back/not to have all been removed but the nurse has now said that this quite probably won’t be an option Despite me being diagnosed with cervical cancer.
My question is, has anyone else been in this position? What can I expect from the results of the MDT meeting? I haven’t been referred to an oncologist or anything which strikes me as a tad strange (my Dad has been battling cancer for over 7 years now so I know you’re usually referred to an oncologist asap after diagnosis even if they think they have removed it all). What can I expect? What next? Sorry for all the waffle and everything, I’m just confused and trying to make sense of it all.