Unusual tumour

Hi all, not had the greatest of days, had to have a tooth extracted today & ended up crying at the dentists- mortified!! My GP rang me today after receiving a letteror summary (don't know what the proper word is), they had being saying it was an unusual tumour for quite a while, & she told me today that my tumour was a papillary tumour which is quite rare I believe. When I loked it up online did not really like what I read- the word aggresive was used quite a bit! I just wondered if anyone had one like this (sorry comparing tumours), or heard of this?? I did hear the specialist say this word to me, but don't seem to have taken it in properly.

Sorry matey x

havent heard of or experienced this so am unable to help. Just wanted to send a hug x

dons

Hi

I was diagnosed with a name something like that in 2009.  I think it means that it has little papillae (sp?) or warty-looking things.   I had chemo-rads and brachy finished in May 2010 and am still alive and kicking (touch wood).

What have people told you about not googling?  Yes, but we all do itLaughing.  When they go on about it being aggressive you should bear in mind that it is also very rare, therefore if it it was even a little bit more aggressive than other cancers the really bad cases would stand out more if you know what I mean.  No way am I any good at statistics.

 

Hope all goes well for you.

 

Big Hugs

Thank you for all the replies, think I was just doing an overthinking, over-reading yesterday xxxxxx

A very common ailment, lol!!! We've all been guilty of it whilst waiting x at least if we've read about the worse scenarios, we can be relieved when we get our diagnosis????? Try not to wonder too far from this site! 

X

Hiya,

 

My tumour was papillary varient squamous cell carcinoma. I couldn't find much info about it either but having asked a couple of others with it, it didn't seem to make much of a difference. It's just that it looks a bit more like a wart in appearance than the average squamous type.

The consultant mentioned it when reading out my full diagnosis but that was the last I heard of it. They did say it was a very shallow tumour in my case so although it looked pretty gross and they thought it was much bigger and had moved down through my cervix, once they'd done the Lletz then hysterectomy it was found to be contained and removed and looked way worse than it was.

Best of luck with your treatment,

 

xx

 

Hiya,

 

My tumour was papillary varient squamous cell carcinoma. I couldn't find much info about it either but having asked a couple of others with it, it didn't seem to make much of a difference. It's just that it looks a bit more like a wart in appearance than the average squamous type.

The consultant mentioned it when reading out my full diagnosis but that was the last I heard of it. They did say it was a very shallow tumour in my case so although it looked pretty gross and they thought it was much bigger and had moved down through my cervix, once they'd done the Lletz then hysterectomy it was found to be contained and removed and looked way worse than it was.

Best of luck with your treatment,

 

xx

 

Hiya,

 

My tumour was papillary varient squamous cell carcinoma. I couldn't find much info about it either but having asked a couple of others with it, it didn't seem to make much of a difference. It's just that it looks a bit more like a wart in appearance than the average squamous type.

The consultant mentioned it when reading out my full diagnosis but that was the last I heard of it. They did say it was a very shallow tumour in my case so although it looked pretty gross and they thought it was much bigger and had moved down through my cervix, once they'd done the Lletz then hysterectomy it was found to be contained and removed and looked way worse than it was.

Best of luck with your treatment,

 

xx

 

Thank you for the reply, so glad you came out of the other end clear!! YAY! I'm going to be a real pain & ask this, a lot of ladies that posted on this forum said they they felt almost ashamed to tell their families, friends etc about having cc because of the virus that can make you have it!! HPV virus. One even said her partner had described it as a 'prolonged sexual disease', something like that!! I just feel so awful & almost to blame when I read these things, like we are almost a bunch of youi know whats getting our punishment for being loose! Please don't get me wrong, I'm not saying that about anyone, just how it makes me feel. I have been married for 17 years, & we have only been with each other all this time, I don't know but I just don't feel good about the implication. Sorry that's my bad feeling I've been having about this xxx

Hello salamoenti, I absolutely feel the same.  There was an item on the news last week about CC and the first thing that the reporter said was that it was a 'sexually transmitted virus' I was absolutely  hopping mad -it made it sound  as if whoever caught it was sexually promiscuous. It embarassed me greatly also, that they emphasised the point - I felt that people who may not be aware of the full facts that everybody carries the virus, would look at me differently and say to themselves that that's how I got CC. I have been with my husband since we were 17 & 18, we've only ever been with each other our whole lives and are completely faithful to each other and always have been. Furthermore it hurt my husband to think that he may have passed the virus on to me.  I'm still angry as I write this.

Sharon

sorry my ipad keeps commenting multiple times on everything :/

Hi there,

Yes I feel the same too, no matter how many times I tell myself it's a virus everyone carries! I just think everyone must look at me and think I deserve it. It's a very difficult to read news articles or things online saying it's a sexually transmitted disease without feeling at fault.

I am feeling less angry than I was, but I was absolutely furious about it at first. I remember getting in to a big argument with a man who said 'well nuns don't get cervical cancer'! I don't know what it's like for anyone else but I just can't forgive myself for having it, despite doing everything I should have done not to have it.

As if we don't have enough on our plate without feeling like we're to blame somewhat. Even Jo's campaign that it's a preventable disease punches me in the stomach when I read it. I guess we have to just cling on to the facts and hold our heads high knowing it really wasn't our fault, regardless of how it is portrayed.

Lots of love xx

 

Hi ladies,

 

None of us should feel ashamed about having cervical cancer. When I was first diagnosed, for a fleeting second I felt like it was my fault. However, the only people who are not at risk of getting HPV are virgins! We are just all very unlucky that our bodies could not clear the virus naturally and changes progressed to CC. Im guessing the majority of us did not have the chance to have the jab either.  So, it does not matter how many people you have or haven't slept with. I have educated so many people on this since my diagnosis! It would help HPV wasn't classed as an STI. Maybe they could label our disability in being able to clear the virus as a cause of CC rather than the virus it's self. That would get rid of some of the stigma.

 

I couldn't give a toss about what people think. There is no shame in not being a virgin, ha. So hold your heads up high and **** what people who are misinformed think!

Tess xxx

 

Yes, I agree with Tes!

i have never felt ashamed to tell everyone. I have cancer, it is not my fault, it does not matter if it is caused by sex cos im married and it should be assumed I have sex!!!!! Just like all other women and men who are married, so where is the shame in that?! Nuns don't get it because they never have sex and are not married!! Plus, society expects unmarried ladies to be having sex with their boyfriends too- would soon be called odd and frigid if weren't!! So where is the shame? Doesn't come from sleeping around, doesn't matter how many people you have slept with. Plus, condoms don't give 100%  protection so cannot even be accused of being unsafe!!

Rah! rah!! Rah!!! ranting over.

dont be ashamed to tell anyone. What helped me was being able to tell everyone so that it wasn't some dark secret. People focused on me having cancer, nothing more. I'm a primary school teacher and even sent a letter out to all my parents to tell thm what was wrong with me so i didn't become something to be gossiped and guessed about.

you need your friends and family now.

xxx dons

Thank you all again, so glad to have this group to interact with! xxxKiss