I have been browsing for a while and I thought I’d ask your advice.
I was first diagnosed with igh risk HPV in England in January 2019. No cervical changes.
Jan 2020 HPV still present, no cervical changes.
August 2020 I had colposcopy in Greece and I saw it CIN1 with my own eyes. Biopsy confirmed this. We said we will watch and wait. They did not remove it. I was told to try Silofgyn ointment for 6 months. It hardly works for older women (I’m 45) but worth a try.
January 2021 in the UK, smear teet came back clear.
August 2021 in Greece colposcopy showed SIL1 but reduced, smaller area affected. I had smear test and DNA which came back with CIN1 and HPV type 58!!! High risk type but very popular only in Easter Asia, very rare in the rest of the world. How I got it, no idea.
I updated my GP so that they put me back on the annual smear test program and that’s where i got stuck. The problem is that in the UK the nurse told me, they don’t test for this type 58 because it’s rare outside of East Asia and she does not know if they’ll look into this. She has contacted the senior cytologist to see what they’ll do with me but doubts they’ll look into it. I told her that I already have CIN1 and whether they’ll ignore it and let it progress and let me die and said there’s not much she can do!! She also asked me why I went you Greece to get a private test done!!! Well, for the exact reason the NHS failed me. I love life! The fact is that yeah, they don’t test for it but now I know I have it and it’s progressing we need to save me from getting any sinister results!
I’m speechless, shocked and very very upset. Do you ladies have any advice experience or tips regarding my situation? I’m in tears.
Thank you in advance.