I haven’t been on here for a long time as I have been concentrating on my recovery. Since my last post about my planned trachelectomy, a lot has happened. I had my trach and lymph node removal on 30th Sept as planned, everything went well but after 2 weeks I experienced a collection of fluid in my abdomen and was admitted to hospital for 3 days for antibiotics and pain killers. Whilst I was in hospital I got the results from my trach and it was good but also bad news, my (45!) lymph nodes were all clear but the margins weren’t clear enough so I was then scheduled in for a hysterectomy (keeping my ovaries) on 7th Nov. By this point I was also struggling with a bit of lymphoedema in my right leg so whilst they were in there, they drained the lymph fluid and I haven’t had any problems since (touchwood). I am now 5 weeks on from my hysterectomy, i’m back at work and feel great. I have had my results back and I won’t need any further treatment, I did have CGIN cells in my womb so it was a good call from my surgeon.
I did initially feel sad about my loss of fertility but I am so happy to be healthy again. I know that I will have children one day, just not through the usual means. I also feel really lucky to have met a couple of people on this forum who have helped and supported me through everything, especially all the ladies of the Jo’s Trust Manchester Support Group. I would urge anyone to join a local support group, the thought of having those ladies behind me every step and knowing they will be there for as long as I need them has really helped me get through all this.
If anyone has any questions regarding the trachelectomy or hysterectomy – I would be happy to answer, I asked loads before my op and it did help.
The number one thing I would say to anyone else dealing with this awful situation is to stay positive, I really believe it helps with your recovery process. Also, remember, what happens to one person may not always be the case for another, every person is different - I don't want to scare anyone in to thinking this will happen to them.
Sorry for the ridiculously long post!!