Hi all, this is my first post but I have been reading this forum since just before my diagnosis, so for starters would like to say thanks to everyone posting for the advice I have picked up this way.
To cut a long story short I was diagnosed with cc following LLETZ for CIN3 smear result. I was referred to a consultant, who I saw on 29th Oct and given a date of 28th Nov to have a trachelectomy. Unfortunately on 27th Nov I received a phone call to say my consultant was off sick and my operation was cancelled, and that they would be in touch with a new date, hopefully next week. Nearly two weeks later, I'm still waiting. I did ring the consultant's secretary on the 29th to see if there was any news, as I hadn't been given any indication that his absence was expected to last a long time. The secretary was (I feel) quite rude and dismissive of me, and the call left me very upset to the extent that I had to leave work, and so I'm very reluctant to ring her again. I contacted PALS last Wednesday to see if they could advise me. They replied on Thursday (after I had emailed again) to say that my consultant was still off work but was expected back on Friday, and that they would let me know either way. They also said that they had contacted a senior consultant to see what the options for referral to another hospital might be. I emailed them on Friday and again this morning for an update but have still not had a reply.
I guess what I'm looking for by posting here is some 'what would you do' advice. I'm aware I'm bring a bit of a nuisance by emailing daily and part of me thinks they will let me know when they can, but another part of me thinks that two weeks have now elapsed since my cancellation and I'm entitled to some information. I have been told that my consultant is the only one at the hospital who is comfortable performing a tracelectomy as they are not the norm, which has obviously made things a lot more complicated. Also, this is not my local hospital, for that same reason.
Until now I feel I have handled my diagnosis very positively but I can feel myself beginning to crumble with every day that goes by in limbo. I hate feeling so helpless and this is the first time since this all began that I don't feel as though there is a plan for me, or that I am anyone's priority. I know there are many far worse off than me so part of me things I'm making a fuss over nothing. Feel free to tell me that if you think its the case, like I said, I just need to get some perspective!
Sorry for such a long post x