In November I was diagnosed 2b/3 with lymph node involvement including my para-aorta node. My left pelvic lymph & para aorta nodes were so enlarged on the MRI that I was told that my treatment was about 'management' rather than 'cure'. By the time my treatment started, I had significant lymphoedema in my left leg and couldn't walk more than 50 steps without pain & tiredness. It all seemed a bit grim tbh.
I had my MRI follow up scan a couple of weeks ago and the appointment for my results yesterday afternoon.
My scan was clear. No sign of any of it.
I can't quite believe it.
Of course I know that it's early days, and myself and the oncology team will be remaining vigilant with three monthly check ups, but I was already steeling myself for a second round of chemotherapy. I wondered how much those lymph nodes might be sending micro cells around my system and whether the cisplatin could find it all. Whatever happens in the next couple of years, this is already a better first result than any of us expected. I'm also hill walking again, 10-12+ miles, something I really didn't think I would be able to do any more!
I'd just like to thank everyone who posts in here. Just after getting my diagnosis, I read this forum avidly. It kept me going all the way through a dark winter and a treatment regime right through Christmas & New Year.(Even when I caught flu in the middle of the treatment cycle and had to postpone two chemo treatments and then have a big blood transfusion). Although II didn't feel able to make posts at the time, the information in here helped keep my husband & I sane and more prepared. I particularly want to thank Lolli888, Tivoli & Phileepa, whose different experiences and practical, honest, detailed & sometimes humorous posts I found especially helpful.
