Third battle

Oh ladies.

My cancer has come back...again, even after my exenteration. I'm so angry more than anything right noW. That I'm never going to see my baby grow up. It was found in my pelvic lymph nodes again. I'm currently on holiday and so I'll be expecting to have plenty of scans when I get back. I know it can't be cured but that's about it. :(

Cara xxx

Sending u so so much hugs Xxxx

Sending my love to u xx

Hello Cara. I was so very sorry to hear your news. You have been through so much and I can understand your feelings of anger.  Never give up your fight Cara, we are all here to give you support. Thinking about you and sending you lots of hugs and positive vibes. 

Hi Cara:

I'm so sorry to hear this crappy news. I don't know if we can swear on this forum, but trust me, I'm swearing.

Keep us posted when you have news of what's next.  I guess they'll whip out the nodes first off and then decide what to do.

Hang in there. 

Sending you buckets of love and good karma.

much love, t xxx

Thanks ladies.

I will keep you updated xxx

Hi Cara 

im so sorry to hear this horrible cancer has come back again!! You've been so brave through out it just isn't fair!! never lose hope i know that's so hard but you don't know how your body will respond to chemo lots are having good results i pray you will too xx 

Hi Cara It's just crap. Please come here often. There are so many on here who feel for you. Who know a little of what you're going through. Jayne

Big hugs thinking  of  you x

Cara, sorry to hear that and that you heard on holiday too, double crap. Thinking of you and good luck x 

Thanks again ladies...not sure how I would manage without this forum. 

Thay was my doing,i felt like I needed to know so rang the nurse and made her give me my results. Part of me wishes I hadn't bothered but the other part had to know either way. 

Love Cara xxx

 

Oh Cara. I am so f*#cking angry for you. I cried after reading your post. You have been through so much. 

I know it sounds hard but please try to keep positive. 

what are the treatments available?

you are always so positive for all us ladies. Please know we are here for you. 

i am thinking of you and here for you. 

sending lots of love 

I need to have a couple of scans and they will suggest treatment from there. From speaking with the nurse and knowing too much about recurrence its not curable. It'll be chemo to prolong my life...that's the word that got me, prolong. I want more than that :( 

Thank you. I don't know what I would do without this forum xxx

Hi Cara Is no one talking about immunotherapy Is their a trial in your area.? Specialist seem to be very quiet in that area Jayne

Hi. I don't think you are allowed to go for a trial unless you have tried the chemo mix the hospital offer you first. So I guess I will have to go down that route to start with. I have heard about immunotherapy and how it helps some people xxx

Well Cara The chemo cocktail worked for me. I was amazed. Maybe you will be too. Jayne

I hope so Jayne I really do. Your story is the only hope I feel I have right now. I know it's in my pelvic nodes but have visions of it being all over the place xxx

The cocktail worked for me as well and it was in many of my nodes all the way up in my abdomen. There's hope ❤

Thank you boundie xx

Dear Cara,

I'm so so angry after reading your post. Damn the stupid cancer! But please... never never give up. Like what Boundie, Jayneeeb, Anna and many others had gone through, the chemo regime of carbo/taxol/avastin could eradicate their cancer. 

For me, because I had been exposed to that regime before, it didn't work that well for my recurrence so they blasted it with targeted radiation and gave me some immunotherapy. It has helped me stay in remission currently. 

As we speak, ASCO 2017 is underway. There is currently an explosion of clinical trials doing combination immunotherapy E.g. anti PD1/PD-L1 plus chemo, anti-PD1/PDL1 plus radiation, anti PD1/PD-L1 + anti CTLA4, anti PD1/PDL1 + IDO inhibitor. I know I'm not in a position to give medical advice but it's good to know available options ahead and be our own advocate.

Go kick the cancer ass again! I'm rooting for you Cara!