On reading though the Forum, I am seeing that a lot of CC was picked up during Colposcopy / LLETZ treatments.
My routine smear test picked up abnormal cells in 2010, since then I had been attending hospital every 6 months, I had 2 further Colposcopy treatments and was told by my Consultant that due to there not being enough area left of the Cervix to treat, I would have to have a Radical Hysterectomy.
I had my Hysterectomy in July 2012, when My Uterus & Cervix were removed, I was advised by a GP to retain my ovaries to prevent early menopause.
6 Month following my Hysterectomy, I was absolutely gobsmacked when I discovered I STILL had abnormal cells present,
I went a further 2 years of having vault smears taken, until my Consultant advised me he was going to take a few biopsy's and discuss the way forward for treatment at a meeting with his colleagues. I later discovered this was a MDT meeting ! Whoever my case was passed onto did not follow up, and infact emigrated. All this time I was thinking they were going to contact me for treatment until I thought, enough is enough and contacted my Consultants secretary.
I received an appointment to go in for a Vault smear and was told I was to come into hospital as a day patient for an EUA - Examination Under Anaesthetic, where they would take biopsys. I waited but had heard nothing from him, so again, contacted his secretary. I was called into to meet with him at the Hospital on the Gynae ward where i was told I had some 'Dodgy' cells which were misbehaving and that again, he was going to discuss with his colleagues the best way forward for treatment. (Another MDT meeting. In the meantime he wanted me to have a CT Scan & MRI Scan just to make sure everything was still ok.
I received a call from the local hospital saying they were to arrange an appointment for an MRI scan, I was also awaiting an MRI Scan for a neck injury, so when I asked which scan it was for, I was informed it's a chest scan to make sure nothing has spread !!!! I tried to phone the Consultant immediately to find out what the hell was going on. When nearly 6 days later I managed to get a hold of him, he arranged another appointment for me to come in and see him and told me it was all just routine.
When I went in, I was gobsmacked to hear him say they wanted to treat me with Radiotherapy as the cells were still not behaving themselves. I had finally had enough by that stage and aked him outright if I had Cancer, My heart sank when he replied Yes !! I was told I would have a session of Radiotherapy which would burn away all the bad cells and I'd be right as rain again !!! You can imagine just how devastated I was when I received an appointment to see the Consultant at Radiology to be told I had Cervical Cancer Stage 1b1 and that I would be receiving Chemo-Radiotherapy & Brachytherapy to treat the Cancer. Cancer, not dodgy cells as i had been told so often.
I left that Radiology Department in a daze and cried for days, thinking my days were numbered. I thought to myself, well at least now I know the truth, I know what I am dealing with so we just have to bite the bullet and get on with this as best we can.
I start my treatment on 30th July and have the finishing line of the 3rd of August to aim for.
I'm sorry for rambing on so much, but I don't want any other woman to go through the waffle and deceit as I see it, that I have had to put up with. I put my trust and my health in the hands of that Consultant and cannot believe despite all that original treatment that I have landed here. I am now focusing my energy on getting well again and getting through this.
Do ask Questions, Don't let them baffle you with waffle, and ask them to clarify what they mean. I am an educated woman with letters after my name and cannot believe professional people deal with their patients in this manner.