I've been reading, getting guidance & support through all your posts over the last few months so thank you all!
I'm 7 weeks post laparoscopic, total hysterectomy with vaginal cuff removal.
I had some early cervical cancer cells removed during a large loop excision back in April. So the hysterectomy was to clear CIN & VAIN 3.
The morning after my TH I spoke to the surgeon. He seemed positive that he'd removed all the cells and told me he couldn't see any more cancer with the naked eye but would send some samples off to histology.
So 6 weeks later I go for my review meeting with my consultant. Taking gifts in thinking that was going to be it until my routine check ups.....wrong!! I saw a different consultant & Macmillan nurse. They told me the cancer has gone which is great news! .......But .... unfortunately histology found some more cancer cells in the samples from my hysterectomy. So they couldn't say what stage I am ( 1A/1B) They were going to discuss this in the MDT meeting and let me know the results. Either hysterectomy would be enough, or they will need to do further precautionary treatment. This could be either lymph node removal or radiotherapy/chemotherapy. They would call me to let me know the outcome. Yesterday they called me and they are still undecided. They are going to send my results to another lab, for them to check it. Apparently I'm on the cusp of either stage and they are trying to make the right decision but they cant come to an agreement. They are going to discuss it again next week and call me into clinic on 2nd September ( the day I'm due back to work... I'm self employed) she did say that I should prepare myself for further treatment. Because of my age they may want to do it to stop it coming back. We're booked to go to abroad for my brothers wedding in October. I'm so upset & cant stop crying at the thought of missing it. I know the doctors are doing all they can to make the right decision for me. But the waiting is so so hard. I just want them to say yes or no so I can deal with what's next.
Has anyone else had to wait so long for a decision? If so, what was the outcome?
Sorry to rant!!
Feb 19 smear....abnormal cells & HPV found
Feb19 Colcoscopy, 5 punch biopsies taken. Invasion suspected.
March 19 biopsies confirm, early stromal invasion and extension of lesion onto vagina
April 19 EUA, large loop & vaginal biopsies under GA
May 19 CIN unclear margins & VAIN3 found. TH & vaginal cuff removal booked.
June 19 Total hysterectomy with vaginal cuff removed.
Still waiting for stage results and decision on further treatment.