the waiting is horrible, it was about three and a half weeks ago I was diagnosed and had my MRI and PET scans two weeks on wed. They told me my MDT meeting for staging treatment would be last wed so held it together till then only to get a call at work saying treatment etc couldn't be discussed as there was no oncologist present. I had built myself up to have answers so just lost it and began sobbing.
the guy on the phone then vaguely explained I'm a 2a but too advanced for surgery but didn't explain what that meant. He said the next meeting is wed again but now I have an appointment for wed afternoon which I don't know is a bad thing or not.
I'm lucky I suppose as I have at least vaguely been told a stage but I completely understand what your going through. I think for me it's the not knowing coupled with the lack of support, information and understanding. i respect the professionals but I think they forget it's a persons life and fears they are dealing with.
once I got the phonecall on wed about the canceled meeting I asked my GP advice about how to get more info. She told me to call and explain that I had expected to have more information by now and I becoming very distressed and asking that a consultant calls me back. I ended up getting the appointment so didnt call but I would say to call again explain how much this is upsetting you and get them to call u back at all. I think if they told you that you would hear on Friday they can't blame you for chasing it up.
I have ranted a lot on here ALOT and always feel bad but I think what we are going through is so awful we deserve to rant. it helps me to put my feelings out there and find out I'm not alone and others feel the same.
i really hope you hear something today as its agonising all this waiting.
hani im so sorry you haven't got your answeto yet and hope you get your pet scan quickly.