I’ve just returned from my EUA and feel stuck between a rock and a hard place.
They can’t be certain that there is no parametrial involvement after, CT scan, MRI scan, 2 normal examinations, PET scan and now EUA.
It sounds as if the scans are implying there is involvement which couldn’t be seen on visual examination and now on EUA they can’t be certain that there isn’t. One side definitely no involvement, other side they can’t see but possibly feel something that could or couldn’t be.
My consultant says this is very rare they can’t decide between 1b and 2b. So it’s been left to me to decide wether I want laparascopic radical hysterectomy or chemo radiation.
Obviously if it does turn out to be 1b a hysterectomy would be amazing, low risk of LT side effects, I keep my ovaries so no menopause (I’m 30) and it’s keyhole so short recovery time and I can crack on with my life. But if it is 2b and there’s some traces of cancer left I’m terrified of recurrence. And then because of the hysterectomy the positioning of my bladder and bowel would be different if i had to have radiation leading to an even higher risk of long term effects.
But then do I go with the chemo radiation straight away and zap everything out of me and just risk all of the LT side effects.
I know I’m being quite vain and I should just be happy that this is a treatable cancer but it just makes me so sad to think my quality of life could really be effected for such a big chunk of my life if I makeep the wrong decision.
My consultant seems to be a leading surgeon in this field and he thinks I should try everything to avoid radiation and the side effects initially and go ahead with the hysterectomy.
Has anyone been in this position?? How on earth do you choose?
Sorry for the long post and thanks in advance. Any advice will be greatly received. Xx