Stage 4 experience

I have been diagnosed today and just waiting for treatment.
Is there anyone on here who could tell me what I may expect. It’s 4a so Dr said it’s curable x

I have no experience of stage 4a I'm afraid as I'm 1b1 but just wanted to give you a hug and say you are in the right place for support. Please do keep us updated and ask questions when needed 

jo

xx

Hi.

You might find many more answers and experiences on the advanced cancer forum which is especially for stage 4 ladies. 

There are also many Facebook groups that have stage 4 sub groups.

The very best of luck with your trearment.

 

Hey hun.  I'm also a stage 4a.  Was diagnosed last Xmas. Had 28 external radiation, 3 internal radiation and 5 chemo. Treatments not as bad as it seems x

Fabulous to see you around Nicky!
Don't go far!
Loads of love to you and Carole
xxxxx
Tivoli

Thanks tivoli nice to see you here too love to you x

Hey, I have advanced cc I don't know what grade as I've never asked - ask away - I am very honest btw!

i had 7 sessions of chemo, 28 sessions of radiotherapy and 3 bracatherapy (they put three rods inside you and blast you with radiation). I won't lie my personnel experience was horrible I wouldnt wish it on my worst enemy!

Af the 1st session I lost all my hair - I was on a very strong chemo & everyone reacts differently! - I had issues with my bladder leaking and I still do but this is due to my cancer putting a hole in my bladder :-(. The chemo made me violently sick literally, I went down to 6st I was a walking skeleton and still am- the weight is slowly coming back on :-), I eventually lost my eyebrows and eyelashes at the end of my chemo as well - they've grown back and so is my hair (yay!!). The radiotherapy played hack on my bladder and bowls but this eventually settled and. The brachy didn't bother me...when they were taking the rods out is a different story!! It took 6 weeks for all the side effects to settle: when I first started chemo extremely painful pins and needles in my feet - I couldn't walk, extreme tiredness - I slept for 18 hours a day and would still be tired!, sickness - they give you anti sickness tablets after chemo which didn't work for me 7 different types of tablets later I hot new that worked!, pain in my lady area after and during the radiotherapy, sores inside my vigina and my skin turned black but soon turned back to normal, generally feeling like crap, getting exhausted when trying to walk anywhere I had to keep sitting down and sometimes still do, my whole body would just ache! i would also have sores in my mouth and couldn't eat or brush my teeth when they flaired up - not without crying, migraines, I've lost count of the water infections I had! I also had 5 stays n hospital and a really bad back - wooh exhausting!

BUT like I said everyone reacts different and I got the short straw! Being anemic and having to have 10+ pints of blood didn't help.

i am so sorry if be scared you - like I said I am honest! If you want to talk you can inbox me xx

Hi x did your treatment last around 6 weeks? Did you have any overnight stays? 

I'm a planner and am struggling either not knowing what is going on. Roll on Thursday. 

I think my first treatment may be 22nd December.  Am I going to feel awful xmas eve and xmas day? We are supposed to be going to the panto xmas eve - am I expecting too much?

There is no overnight stays unless your hospitalised for something xx

Hi phileepa, my oso stage 4 ...tml will start her 1st chemo and oral chemo . Wish it cures....i m panic and shaking but i need to stay tough in front of her..do advise how we should do?