I was recalled early by my GP for a repeat smear in October 2015 as the nurse who’d done my test in April 2014 was training and their technique may not have been able to give me an adequate result (although the test result from the lab came back normal). I had a test in November 2015 which came back as moderate dyskariosis.
I was referred for a colposcopy which I had exactly 2 weeks after my smear test. At the appointment the nurse said she could see a small area that may have accounted for the abnormal result but didn’t want to treat it so took 3 biopsies and the biopsies came back as viral changes. Because of this my case was referred to their MDT meeting where my original smear test was reviewed and it was agreed that it definitely did show moderate changes but not a huge amount but also that the biopsies were quite scanty samples and one was inadequate. They advised a repeat colposcopy and further biopsies in 8 weeks time.
I went back in Jan where I was seen by a different nurse who took 2 further biopsies. They had a camera at the clinic so I was able to see it both times (lovely!!) And second time around it looked worse to me but I’m not a nurse.
These biopsies again came back as viral changes only so I’ve been discharged back to my GP to do a repeat test in 12 months.
I just can’t put it to the back of my mind for 12 months so wondered if anyone else was in the same boat. I can’t understand how a smear test (which was looked at in the lab & by the MDT meeting) can say moderate, both nurses thought it was CIN1 & expected biopsies to agree yet biopsies show viral changes only. Where have the moderate cells gone so quickly?!
I was never tested for HPV since my referral smear was moderate but the nurse said it was likely I have it as my biopsies showed koilocytosis but obviously no idea if it’s high risk or not. I’ve been with my husband for 9 years & there’s no concerns around being unfaithful so its likely I’ve had it for a long time if I do have HPV, therefore not sure it’s all that likely to go away in a year.
I’ve contemplated going private to get one at 6 months but don’t want to be ridiculous, equally can’t shake off the niggling feeling something got missed. Even if I just knew my high risk HPV status that would either put my mind at rest or at least mean I’m more aware of any symptoms etc…
Does anyone know if your next smear is 12 months after the first one or after the discharge from colposcopy date? My two dates are 10 weeks apart (over Christmas) so would rather it be the soonest date, does anyone also know how early you can have one? I know at my last routine recall they could do it after 2 years & 6 months rather than having to wait until the full 3 years
If anyone has any advice I’d be really grateful, nothing adds up so don’t know what to believe!.