Hi there - thank you for responding to my message. What happened was that on December 12 2012 I'd been to see a gynae about vague pelvic pain I'd had for a few months. I'd been seeing a general consultant about this and had undergone several tests as at one point they thought they could see a 6cm tumour on my cervix - apparently this turned out to be wrong and they said it was a loop of bowel which 'looked' like a tumour! It's all been a nightmare but eventually I had a pelvic MRI which came back clear thank goodness.
I was then referred to a gynae to see if we could find out where the pelvic pain was coming from and she took a smear test on 12 December (my last one was almost 5 years ago as I'm 56 and it's every 5 years after age 49). Unfortunately the results seemed to have been lost for a while because I didn't hear back until 26 January 2013 (6.5 weeks later) that there were severe abnormalities which my GP said would equate to CIN 3.
I was booked in for a colposcopy on 31 January but the doctor said nothing was showing up when she put the dye on the cervix so she couldn't take a small (punch?) biopsy. Also, my cervix was tightly closed and so she couldn't see anything higher up. I was then booked in for a Lletz on 12 Feb. On that day she said she would be taking a sizeable sample (1cm) and was hoping that it would include the abnormal cells, ideally with clear margins. I asked if she would do a cone biopsy but she said she tended to use Lletz instead of cone in many cases.
I found out this Monday that the tissue she took didn't have any evidence of CIN at all which is why they now want to take tissue from higher up the cervical canal and womb lining. They need to see where the severely abnormal cells shown on the smear originated. I'm booked for a diagnostic laparoscopy on Tuesday 26 February when my gynae is going to take another piece of my cervix (from the top end?) and also samples from inside my womb using a general anaesthetic. I gather they are doing this because of the confusion over the supposed tumour they thought they had found last year.
I just wondered whether anyone else had abnormal cells higher up the cervical canal which didn't show up on Lletz and had to undergo further biopsies like me.
I'm now scared that there is something sinister going on in my womb - especially as they are linking in my recent history to this abnormal smear.
Thank you everyone for your help - sorry it's so confusing!