Hi there lovely ladies,
I just had a follow-up appointment with the results from my first LLETZ. The consultant confirmed what my smear suggested, I have CGIN but the margins from the first LLETZ are not clear so I will need a second LLETZ, which is booked for 8 weeks after my first LLETZ.
The doctor immediately wanted to know if I had completed my family, and I reminded him that no, we had just started TTC when this is all started with my smear results. I am 39 years old. I asked him that if I had completed my family, would he recommend a hysterectomy, and he replied yes.
He mentioned wanting to do an ultrasound scan, and I wonder why? I was in shock of having to do a second LLETZ so I did not ask all the questions.
He mentioned doing a “conisation” using a Fischer cone and did not actually use the term LLETZ. He used a Fischer cone in the first LLETZ.
He confirmed that my risk of miscarriage and premature birth would be higher with this second procedure, but that if I were pregnant after the second procedure, they would measure my cervix and maybe do a cerclage.
He looked at my cervix and said that I wasn’t entirely healed after my first LLETZ (it has been exactly four weeks) . The reason for doing the second LLETZ in two weeks is to allow for my cervix to continue healing, but also not wait too long either, to accelerate this process so that we can try conceiving soon after this second procedure as, with my age, time is of the essence.
After looking at my cervix, he said he was happy to do the second procedure again with local anaesthesia vs, general (the first one was local anaesthesia) as apparently I still had a lot of visible cervix to excise.
I am incredibly deflated to have to go through all of this again, I was in sooooo much pain after the procedure, and the waiting for the results is horrible, especially with glandular changes vs CIN.
I also am concerned about fertility, and also feel like I will never be completely reassured that even if the margins after the second procedure are clear, that I might still have residual CGIN (because of skip lesions) and that during the time of trying to conceive and eventual pregnancy, it might turn into cancer. Today, trying to conceive could not be further from my priority, but I still feel terrified of not being able to get rid of it all, and equally for me to not be able to have a child.
Thank you so much for reading my story. I would love to hear about women who have had a repeat LLETZ (or a second procedure) due to unclear margins with CGIN. What were the results after the second procedure ? (good and bad, do not hesitate to share your story even if the outcome wasn’t good…) Was your recovery worse than with the first procedure? And anything regarding fertility after a second LLETZ with glandular changes…
Thank you so much for your help. xx