Hi ladies i got my results from rh today margins were good although they found microscopic amount in 1 lymph node so i am to go on mon to discuss radiotherepy although they said maybee no chemo which i thought helped the radio ? Anywaay i'm finding it really hard. Feel like i did when 1st dig and hard to be possitive and just want to cry my hormones arnt helping as i had my ovaries removed any 1 had simular x
Hi pinkprincess
So sorry your pathology report came back with a positive lymph node. I understand exactly how you feel, I had a radical hysterectomy in April for 1b1 grade 3 squamous cell with ovary preservation, I really believed that the op would be an end to it all I also had clear margins but I had 2 positive lymphnodes out of 19 and lymph vascular space invasion. It really is devastating to hear you have to undergo more treatment and as you say it feels like being diagnosed all over again it takes some getting your head around. The biggest thing for me was the loss of my fertility and I still struggle with this now as I was only 22 when diagnosed with no children 
.I had 5 weeks of radio and chemo once a week for five weeks. the treatment was ok I was lucky as i didn't really have many side effects just felt very tired all the time it's not easy but is definately doable. Because of the clear margin I didn't have to have brachytherapy so that was a bonus and hopefully you won't need this either.I was told the chemo was given to help the radio and would mop up any stray cancer cells if there were any I have read posts from other ladies that have just had radio though with good results. It's ok not to feel positive all the time and to get upset I get so annoyed at times when people say to stay positive I know they mean well but it's not their bodies going thorugh this. Like I have said I was devastated as I knew my ovaries were gona get frazzled and at the grand old age of 22 I would be put into menopause even before my own mother
but I knew i needed the treatment and wanted everything thrown at this nasty in the hope that it will be gone for good and not come back. I hope all goes well on Monday for you please keep us posted.
Love Nat xxx
hi nat thsnk you so much for your reply I see from your profile you are from notts I am also being treated at [hospital name removed] under [consultant name removed]. My heart breaks for you having to go though this and lose ur fertility. I also hope your next scan comes back clear I think it is quite common to show up scar tissue after radiotherapy by what I have read up on it. There is nothing worse than coming out the appointment with no def answers every appointment iv'e had seems to have been like this I know this feeling to well even after the histology they cant decide what type mine is and I to have lvsi. Thanx again for taking time to reply x
Hey Hun
Yes I was treated at [hospital name removed] It's a small world lol. [consultant name removed] did my RH she worried me because when she was describing the op she was very animated and looked like she couldn't wait to get her hands inside me and rip everything out
I'm now under her and [consultant name removed] I dont know [consultant name removed].They are a good team though and I trust them even though I havent had one appointment where I have come out smiling I'm sure that will happen in one day hopefully in January. The radiology dept is really good and the staff there are great so if you do need further treatment they will look after you. You like me have a lot of high risk factors for recurrance so although the thought of going through radiotherapy is not nice at least they are zapping it with everything they got. Have you started on any HRT I started it about three weeks after treatment finished and it has been great for me I ould highly recommend it. Please let us know how Monday goes will be thinking about you.
Love Nat xxx
hi nat I go on tuesday to see about hrt it's harsh I think that's why I'm not coping well I'm not sleeping with the hot sweats and I just want to sit and cry all the time I just hope I can take hrt as I'm awful with hormones I could never take the pill. I'm also going to see [consultant name removed] tom got to honest it terrifies me I'm scared it's going to make me really I'll and sick x x
Hey Hun
The night sweats are horrible at first I coped quite well and thought if this is menopause then it's not so bad but after a few weeks i couldnt stand the lack of sleep and taking my jacket on and off a million times a day. I didnt really get too emotional or moody but I have got to say since taking it i do feel more like my old self. There are lots of different ones and it usually takes about two weeks to kick in so if one type doesn't suit you can try others they also come in patches I take tablets and am lucky that the first ones i tried have worked.
I know it's easy for me to say but try not to worry too much about radiotherapy making you really ill, it effects everyone differently and again maybe I was lucky, It did leave a metallic taste in my mouth but I used to take fruit sweets and drinks and apart from that I was just tired all the time, I had no sickness or radio runs although the skin on my bum was really sore they gave me some cream and it healed quickly. I do suffer from backache now and worry about any damage it has caused but I guess we have no choice in having the treatment I used to lay there during radio saying to my ovaries please don't die but of course they did but if it means the nasty is gone and I get to live that's what matters. You can do this.
Love Nat xxx
Hi Everyone
Just a gentle reminder to avoid using the names of hospitals and consultants in posts as per our protocols. This protects you and Jo's.
Thanks for your understanding in this matter.
Best wishes
Rebecca
hi nat just thought I would update you I have 5 weeks chemorad and 1 branchy to get through I .freaked out abit at the branchy but she said I don't have to be admitted for it I hate hospitals so feel slightly better. And I have been to doc today and got hrt premalin hoping I'm ok on it. Hope you are ok and thanx again for ur support. If you ever need a chat or even just to rant just pm me love rach x x
Hi there, I just noticed that u have been to ur docs today to get HRT. I just thought I would mention that I too have had a rh followed by 5wks chemo/rad for lymph node involvement. I was put on the HRT Premarin, is this what u r on? When I attended the Jos Trust “Let’s Meet” in Sept, one of the consultant specialists running the HRT workshop told me to change my HRT which is derived from female horse urine onto a plant based synthetic HRT as it contains estrogens even better matched to the ones found in human ovaries. I’m no doctor but it was something to do with the fact our menopause wasn’t naturally occurring & because we have no womb/ovaries etc. im sure someone will correct me if im wrong here but thats as much as i understood it! She said we should ask for any type of Estrodial HRT. She certainly seemed to know her stuff!! When I questioned my prescription with a new doctor she was surprised I had been put on Premarin too & has since changed them. I think Premarin has been quite widely prescribed historically but there are now much more appropriate things available. I think it is quite hard to find a GP who is up to speed when it comes to prescribing HRT in these circumstances from what I have heard. I don’t believe the HRT causes any harm but I think it’s a case of there being better things available that’s all. Just thought I wud mention it as it may b worth seeing what ur consultant says about it at ur Nxt appointment. Masses of good luck with ur treatment…it is very very doable. Big hugs.x
Hi lulu. Thanx for the info i know nothing about hrt to be honest i just said the least hormone as i'm crap with them thanx though i will ring my dr ask x
Hey Rach
Soo sorry you have to go through this how are you feeling about it all. Please try not to worry too much about it (i know easier said than done) I definately found the thought of having it much worse than actually going through it ( I do have a vivid imagination and expected all sorts of horrors lol) The time really does go very quickly you will get through it. Have they given you a date to start? I haven't had my laptop all week and I was thinking about you, I hope the HRT is going well and is suiting you and hopefully you start feeling a little better soon. If you need anything just let me know and please keep me updated during your treatment.
Love Nat xxx
Hey Rach
Soo sorry you have to go through this how are you feeling about it all. Please try not to worry too much about it (i know easier said than done) I definately found the thought of having it much worse than actually going through it ( I do have a vivid imagination and expected all sorts of horrors lol) The time really does go very quickly you will get through it. Have they given you a date to start? I haven't had my laptop all week and I was thinking about you, I hope the HRT is going well and is suiting you and hopefully you start feeling a little better soon. If you need anything just let me know and please keep me updated during your treatment.
Love Nat xxx
