Firstly, apologies for posting about something that I know there is some information on - however, I’ve looked at the posts and they don’t fit quite with what I wanted to ask, plus they’re mainly from a few years ago. I also want to say that I feel for everyone and your individual situations, I feel bad asking for advice on something that might not be as serious as other people’s situations. All I can ask is that you take pity on my confusion!
So I had my first ever smear test in August, as soon as I turned 25, and the results came back as moderate dyskaryosis (no CIN grading was given). I then attended the colposcopy clinic in September and was told there was an area of low grade change that was nothing to worry about. The nurse told me to go on my planned holiday as normal and booked me in for a diathermy loop excision in October. I had that done last month and have just received my results from the hospital. Well I say I’ve received them, I’ve actually been copied in on a letter to my doctor’s surgery that simply states: “The histology has been reported as CIN3 and high grade CGIN. We have arranged to see this patient in the smear clinic in six months time”. That’s literallty it, no explanation, nothing!
So typically I’ve been googling all weekend (dangerous!) and meant to ring the nurse today but completely ran out of time due to a busy day at work. I’ve looked up CGIN as I didn’t even know what that was, and as I understand it it’s cells further up your cervix towards your womb?? Now that doesn’t sound good, and a lot of the ladies on here who’ve had that have been advised to have a hysterectomy if they’ve already had children.
The thing that really bothers me is they haven’t explained what my results mean, they haven’t told me whether my margins are clear and they don’t want to do a further check such as a hysteroscopy (I think that’s what it’s called!) to see whether there are more pre-cancerous cells further up! Does anyone have any experience with this? I think I’m going to ring the nurse tomorrow but would love to hear some advice from ladies who have been through any of this themselves
Thank you so much in advance xxx