It has been quite a few months since I have been on the forum due to treatment and surgery but I wanted to come on and give an update. I know a couple of people were following the story and didn't want it to just end when the website migrated part way through the story!!
To summarise I was diagnosed with metastasis in May 2012 after a pelvic exenteration in Jan 2011 and chemo rad in Jult/Aug 2010 for stage 2b. I was accepted onto the CIRCCa Trial and began treatment in June. It was double blind trial which meant neither myself or consultant knew or knows if I was given the trial drug however due to the side effects the drug causes it was assumed that I was on the trial drug.
I was taken off the drug about 4 weeks into the treatment as my body was too sensitive and I was rushed into hopsital a couple of times but luckily I remain on the trial as such and continue to get scans every 2 months as part of it. I received 6 cycles of Carboplatin and Taol although the dose did have to be reduced due to my neutrophils taking a hammering after the 2nd cycle. The cycles were scheduled to take place every 3 weeks but again due to UTI's caused by low blood count they were delayed on a number of occasions. I finished treatment in Oct 12 and now am just being monitored and in 'wait and see' terratory. My scans have all had good results with my most recent showing that all lymph nodes have resolved (cleared) and the cancer in my spine and shoulder bone has shown to be sclortic (healing) and on the last scan beginning of Jan the bones showed as clear. I must stress though that the bones had not been specifically looked at but on previous commentary it always showed as there but sclortic and this time it stated clear. I am obviously elated with the news as we could not hace wished for anything more based on my diagnosis. I know that I cannot be cured in the normal sense and that it will come back but my consultant has ladies on the trial who had to stop taking the drug too who are 12 months post treatment with no further growth. I have to hope that I too will be one of these ladies.
I wanted to update this as I know how scary it can be when you have a recurrence or hear news that you have mets. You scan everything for positive stories and something to cling too and in my case I found nothing. I found scared ladies posting intially when they were told and then nothing which frightened me more. You start to think all sorts of things. I don't know how much time I have or when the cancer will start to grow again but my body has faught and so far has won this battle. I hope that if anyone comes across this post and has just been rediagnosed that you can find some comfort. The treatment is tough but in my case it has done its job.
My next scan is March and I will continue to update what I hope will be good news for many many months to come.
The ladies on this forum are amazing people and many are now very good friends and I would just like to thank all those who continue to support me.