Firstly, I'd like to thank all of the contributors to this site, I've been obsessively reading your comments for the past eight weeks or so and they've really helped me cope. I'm 62 and have a grown up family, my heart goes out to all of the younger women suffering from this disease.
I was diagnosed with 1B1 cc on 17th May and am now 4 weeks post surgery. My cancer is adenocarcinoma, so hadn't shown up on my regular smear tests, and is not hpv related (I don't know if that is a good or bad thing in terms of prognosis).
The worst part of this journey so far for me has been waiting for the op and then waiting for the results. Two weeks ago I received the best possible news, the consultant was confident that she'd removed all of the cancer and the lymph nodes were negative. I'm now on 3 monthly check up appointments and although have some negative days, I'm mostly recovering well. My biggest problem has been a recurring uti which was probably caused by two weeks catheter use. I've just completed by second batch of antibiotics and am hoping they've worked. On bad days I'm fearful that I have bladder cancer, it is still not behaving normally - but then have to get over myself:)
I'd like to share some of the most useful tips I was given re: recovery.
1. Drink loads of water, loads, post op.
2. Drink peppermint tea, it really helps with the bloated/gassy feeling.
3. Take the "stool softeners" - ask for them if not offered.
4. Take "big knickers" to wear post surgery and wear a nightshirt, pyjamas would be difficult
5. Walk a little further each day and wear support pants. I've been wearing Sloggi, light support pants and they've made a huge difference. Now 4 weeks post op I can walk a couple of miles each day.
6. Call the specialist nurses whenever you're worried, they are lifesavers and offer brilliant advice.
7. Keep to a healthy weight, to be overweight increases the risk of recurrent twofold (according to my consultant).
8. Lie down and sleep, feet elevated, for around an hour each day - resting definitely helps with "swelly belly".
Once again, thank you all for your positive contributions to this site...Linda x