I was diagnosed with Cervical cancer in November 2013 stage 1B1 , The tumor was large but there was no lymph node involement and my margins were clear. I had a radical Hysterectomy in December 2013 however my Overies were left due to my age (41 at the time) and being able to have a natural menopause. The op went well and i was refered by my Gyneacologist to an oncologist as she thought i may benefit from some Chemotherapy/radiotherapy .
I saw the Oncologist in January 2014 who advised me that i did not meet the criteria for treatment , criterial being 1) size of the tumor 2) lymph node involvement and 3) how clear the margins were , i only met one of the 3 which was the size of the tumor. I have remained under his care since, having 3 monthly check ups. I January this year 2015 , he sent me for a routine screening CT scan which i had in March. Early April i was sent a CA125 blood form in the post and was to have this before my Oncology appointment at the end of April. From this point i suspected something was wrong. I attended my Oncology appointment and was seen by a Consultant gyneacologist who advised me that the CT scan had picked up a 7cm cyst however i was advised that the "cyst looked ok and didnt need to come out urgently" I was therefore booked to have this removed. I had this cyst removed and my left overary on 06/07/15. I attended my next 3 monthly oncology check up 27/07/15 to be told it was cancer however they were unsure as to if it was a overian cancer , a spread from somewhere else or cervical cancer reoccurance i had to wait for more pathology results and that that they were comparing my original sample from the radical hysterectomy to this new sample.
In the meantime i was sent for a PET scan
On 10/08/15 it was comfirmed by my Gyneacologist that this was cervical cancer reoccurance , however the PET scan was clear. My Gyneacologost referred me back to oncology for chemotheraoy and radiotherapy to blast any cells that the scan may not of picked up . I remained quite postive .
I was seen by a different Oncologist yesterday 19/08/15 who put the fear of god in to me , he advised that as the cyst was attatched to the illiac artery " he would bet the is cancer still there somewhere " he said i will begin 5 weeks of chemotherapy and radiotherapy in about 2 weeks time, he then went on to say if this does not work " there are other options" i asked what the other options were, to be told " palliative Chemotherapy"
I am really struggling with that if this 5 week course of treatment does not work i will then be palliative ,
I am changing my diet and excerising more to try and keep as healthy as i can be , i have also read about large doses of vitamin C helping fight cancer , has anybody else heard of this? I asked the oncologist about this but he said he did not know enough about it so could not answer.
Although i accept the cancer is back , I would really like a 2nd opinion on treatment options , im really scarred that after 5 weeks of treatment there is the possibility of being palliative. Does anybody know of any Cervical cancer specialists anywhere in the counrty , NHS or private where i could seek for a second opinion ?
The Oncologist i saw yesterday says " i am an unusual case " when he asked me my age and i said i am 42 he replied he normally sees people born in 1942 !! I felt he was quite negative and he contradicted himself on occasions such as talking about me being palliative but then in the next breath talking about me being young and living a long time with osteoporosis ( side effect from the treatment)
If anybody could offer any advice i would be very grateful. If anybody knows of any specialist centres anywhere i would really like to hesr from you .
I have booked an appointment to see my Gp to discuss, and i plan on ringing Mcmillan to see if if they have advice.