Radical hysterectomy - what do I need?

Hi ladies

I found out I had cc in April seems like a lifetime ago. Was originally staged at 1a1. Had a come biopsy in May which showed another tumour so staging changed to 1b1. Have since had an MRI and was moved to a different hospital cos in NI there’s only one hospital team that can deal with cc if it goes above 1a1. Met my new consultant had a horrific examination (front and back internal) which I wasn’t prepared for. He explained the operation to me and has me booked in for 21st of this month for radical hysterectomy but Su minute I’m keeping my ovaries as they reckon they’re not infected.
So I’m trying to get organised for my stay in hospital. The date isn’t ideal as it’s the date my dad died over 20 years ago but my poor mum is freaking out that she’s going to lose me as well.
My question is what do I need to bring into hospital with me? So far I have nighties and 4 pairs of pjs, pants, toilet bag etc.
Do I need to buy the maternity pads or would nighttime/ heavy flow sanitary towels do?
What about treating trapped wind? The nurse told me with keyhole it could be a problem so want to be prepared.
Also any other bits of advice from any of you ladies would be gratefully received.

Thanks in advance
Tanya

Jan 2016 went for routine smear

feb 2016 called for colposcopy after abnormal cells detected biopsies taken

april 2016 confirmed abnormal stage 3 precancerous cells and given lletz treatment told see you in 6 months

26 April 2016 called in to see consultant told had cancer (world fell apart) believed stage 1a1 red flagged for cone biopsy

19may 2016 cold cone biopsy to stage cancer waiting for results

1st June told another tumour found in biopsy staging changed to 1b1

8th June discussed at mdt meeting and moved to another hospital. Also on waiting list for MRI

16th June MRI -

21st June met new consultant MRI showed cancer confined to cervix - radical hysterectomy advised given surgery date 21st July

Lots of peppermint tea for the gas, an eye mask and ear plugs for uniterupted sleep, wet wipes, dry shampoo and some snacks.  I also took an ipad and downloaded some books and films onto it. 

Good luck with it all. 

N xxx

Just had mine (7 days post op)

n rather than pj's as you will have a catheter fitted for a week.

eye mask as they turn lights off late in hospitals and I struggled to sleep

peppermint tea , prunes , figs to help with the gas.

good luck with it all xx

Thanks so much Nellie

I couldn't remember the name of the tea. The eye mask and ear plugs are also a brill idea as I know I'm on a ward not a side room. Will download some books too. 

 

Thanks again for replying xxx

Confetti

hope you're doing well 7 days on. Didn't even think of the catheter so will go get some nighties (any excuse to shop). Will get some prunes and figs too. Thanks for replying and wishing you a speedy recovery sweetie xxxx

Hi Tanita:

Good luck with the surgery.  Will you need slippers or flip flaps? If you want to walk around the ward/go to the bathroom you may want something on your feet. I wouldn't worry about pads - I used a couple the hospital gave me the first night/next morning and never used them again. Annoying really, because I had stocked up with several packs of heavy use/overnight pads and ended up throwing them all away.

Drink as much water as you can. I didn't really have much gas but a lot of ladies do, so whatever helps with that is good.  I did drink bucket loads of peppermint tea so may be that saved me.

love t x

Thanks Teresa I forgot to put slippers on my list lol. They're packed and all couldn't be doing without them. I'll just buy one pack of pads. I'll definitely try to drink as much water as I can- I had read they keep an eye on what you drink to check your bladder but don't know if that's true or not. Thanks so much for taking the time to reply to me. Hope you're keeping well xxxx

Thank you tanita2507

post op 10 days now 

the gas & bowel movement that has caused the biggest issue , drink lots of peppermint & water

unfortunatly I have developed a urine infection after catheter was removed & acid reflux which isn't pleasant but hey ho just got to get through it.

wishing ou all the best xx

Oh confetti I feel for you. I had infection after infection after my lletz procedure and got a uti after my cone biops. Sending you electronic hugs and well wishes. Xxxxx

Tanya xxx

I've just read this thread and as I was about to reply I saw that your surgery date is today so perhaps you won't read this until it's too late to help, but I hope everything has gone well for you today. 

My surgery was two weeks ago and by far the worst thing for me was the shoulder and chest pain caused by the abdomen being filled with CO2. I drank loads of mint tea, but as the gas isn't in your intestines it doesn't really help. My advice is to take all the painkillers you can! I was prescribed oral morphine afterwards, not regularly, just as needed, and once I realised that I made sure I asked for it when I was really sore, however looking back I probably should have taken it more than I did. I had never had it before and it didn't make me feel weird or anything, it simply helped with the pain. 

Alos, I was given a leg bag during the day (my catheter was in for 3 days) which meant I could walk around easily. I even got dressed and went for a walk outside the hospital so that might be worth asking about if you're in for more than one night. 

Let us know how you are once you feel up to it X 

Good luck for you op today!!

rest up xx