I thought I would come back and update. I had an EUA yesterday ( which was no big deal of course) as they needed to gather as much info for as possible for next Thursday. I am a little complicated as I have previously had my colon removed for cancer and have an internal J-pouch ( a reservoir created put of my small intestine so that I don't have to wear external bags. This is one of my main concerns at the moment, whether the uterus is adhered to it. If it gets damaged I will have to have another ileostomy.)
I have been graded as 1b1, and they are very reassuring at the moment that surgery should be the only treatment needed. ( I know it's major surgery, but it would be a huge bonus if I can avoid chemo and radiation therapy - if my pouch survives the surgery then chemo and radiation would probably wreck it.)
I also have to have a longitudinal cut, not key hole ,as they need to be able to see what they are doing. They have been excellent I have to say- I had a pretty bad experience with my first surgery but I can't fault either of the two hospitals who have dealt with me this time. They have the notes from my first surgery and an experienced colo-rectal surgeon who creates pouches is going to be present in theatre - at least I know of anything goes wrong,It won't be through want of trying on the doctors' parts! I have already met my anaesthetist and he is really funny- the whole team have been wonderful. It makes me feel teary, they are so nice ( but I worked as a nurse for years and always tried to give the very best care, so it's nice to receive it for once!)
I am really concerned about the stats for lympheodema and bladder damage, so that with my pouch are my main concerns . Also has anyone had a non key hole radical who can advise me in thinking I am likely to be in about 7 days, please? And how long I will be before I can walk easily? I had booked a b&b stay at the seaside for me and my youngest for 5 weeks after the op, and I can arrange transport there but of I can't walk to the beach with him it's pointless really. I don't feel I can just wait and see, as it's a lovely b&b in great demand and I don't want to mess the owners around as they could rebook the room out easily at this stage. My previous surgery was keyhole so very different.
What a journey this! Reading some of the posts on here is heartbreaking- I feel so blessed that I am facing this at a much greater age than some of you on here ( I am 55.)