Um, yes, tricky one.
I was in a fairly similar situation; informed I had LVSI, PNI and a close margin following a radical hysterectomy. However unlike you I was positively advised to have chemo-radiotherapy which I very reluctantly agreed to.
A couple or so years later I was complaining to my surgeon about my various side effects (see below) and he said that, at the time, my case was hotly debated at the MDT - he felt he had got all my cancer out but it seems the chemo-radiotherapy team won the argument. Who was right? we’ll never know.
In terms of the figures that the PRDA give out I guess that includes those who had radiotherapy years ago when the treatment wasn’t targeted in the way it is now. Targeted radiotherapy should result in less side effects; I had targeted treatment in 2017
In terms of my side effects; my absolute worst one is lymphoedema which restricts a lot of my activities and in my case is very onerous to manage. Radiotherapy increases the risk of lymphoedema, over and above having lymph nodes surgically removed, because it damages lymph vessels and any remaining lymph nodes. That said, most people don’t get lymphoedema or if they do it can be fairly mild and may be easily managed.
In terms of my other side effects I do have some bowel issues; a bit of incontinence and bleeding plus occasional flare ups where I’m not happy to be too far from a loo. Bladder wise I don’t think the radio has had much effect although it may have exacerabted my urinary retention which was caused by my surgery. The radio has had quite a profound effect on my vagina - it’s very narrow and short (bearing in mind the top half of my vagina was removed during my surgery) ! I decided I didn’t want to use dilators any more and I’m not bothered about sex so for me it’s not a major issue - I’m in my mid 60s.
I do sometimes wonder if I wished I hadn’t had radiotherapy and taken my chances? But then I haven’t experienced that situation so I can’t give a balanced opinion.
As I say, yours is a tricky dilemma. Everyone’s different how our bodies cope with the treatment; there’s no way of knowing until it’s done. The best you can do is give it your best shot in terms of making a decision,