Hi all
I finished treatment for a 1b1 cervical tumour plus 1 pelvic node in November. Initially booked for a radical hysterectomy, but the node moved me straight to chemorads. I had a bit of a rocky ride, in that I only had 4 of the 5 chemos due to low wbc and then after a blood transfusion my bloods all went loopy and my haemoglobin dropped to 60. Because of the anaemia my brachy was delayed by a couple of weeks and my haemoglobin was still lower than the 120 they like when I had it - which makes me think the brachy might not have been as effective as it should.
My pre brachy MRI was clear with NED and the surgeon placing the brachy rods reported NED. I was due to have an MRI 12 weeks post treatment, but because my pre treatment/staging MRI hadn’t picked up the lymph node and it was only found on a “let’s be certain, might as well use the new mobile PET” scan, I asked if I could have a PET this time round, instead of an MRI. I got the result today and apparently a small area on the lip of my cervix lit up, it wouldn’t have shown up on an MRI. My consultant says he’s not pushing the panic button yet, but that I will be called in for either an EUA and biopsies, or a second scan. He said it could be activity from the rads, but they need to check it’s not residual disease. If it is residual disease I’ll need a simple hysterectomy.
I know this isn’t too awful, but I was hoping to come away today ready to plan the next three months, and due to go back to work on Monday. Now I feel like I’m back at the start again. Has anyone else had similar? It seems unusual to have the chemorads and then surgery…I know I’m jumping the gun here. I’m also confused as my consultant keeps trying to reassure me that there was NED on the MRI 4 months ago, but then he’s also telling me an MRI wouldn’t have alerted them to this unusual activity still going on in my cervix.
Feeling rather lost and very scared.
Anne x
