Firstly I'd like to thank all of you who post your questions and concerns, and all of you wh reply with your experiences, knowledge, and support. I've been lurking here for a few weeks now, and I truly think this forum is the only thing that has kept me sane so far.
I found out on Monday that I have adenocarcinoma stage 3c. A PET scan last week showed some inconclusive nodes (2 para aortic and 1 rectal) that are of concern for my team, so I am about to start an aggresssive treatment next week. I'm starting with 3 or 6 rounds of carboplatin and taxol, then chemorads including brachytherapy, then potentially a hysterectomy when all of that is done. I was told that I'd be feeling quite crappy for the next year or so, but that we would be able to get rid of the cancer. A bit of good news with the bad. I'm just relieved things are starting to happen as I was left alone to stew over things for six weeks since being told I had cancer.
I have about a million questions that have come up since my consultations on Monday. I know I will lose my hair, and this is very upsetting to me. I've ordered some nice headwear online, and will deal with this the best I can when it happens. It is out of my control, which is hard enough for me at the best of times. I've already picked up the anti-nausea meds, the stool softeners and the Imodium. I'm doing the best I can to prepare now, so I can allow myself to feel horrible right from the start if that's the way it's going to go for me.
I was also warned about sores in my mouth and was told to rinse with a baking soda slurry. For any of you who have had this, did you only start to rinse when the sores appeared, or did you do it from the start to try to prevent the sores?
Because my tumour is large (10.5 cm), I have had cramps since January and bleeding since March. If anyone experienced anything like this, how long into treatment will these ease? Up until now, Advil has been my best friend, but I was told I have to stop taking it.
Though everyone's situations are a little different, this forum has made me feel less alone. Thanks in advance for any support and advice.