I have been watching and reading all of you but did not have courage to tell my whole story.
But here I am almost 8 weeks post treatment.
Everything started last year august, got PAP test with HPV16, told pre-cancer cells and nothing to worry.
Colposkopy done, severe changes and pre-cancer cell.Been send for cone.
Cone done on 14.october, doctoer told me everything looked perfect and nothing to worry.
However 8.dec got the results - CC 1a2, tumor remover with cone but not clear margins. Tumor size 5 mm invasion and 7 mm diameter.
All doctors were so sure that there is nothing to worry. So started with scans:
- CT with colouring liquid shows nothing, lymph nodes all normal size
- MRT shows nothing, lymph nodes all normal size
- PET shows nothing! No spread, just scar after cone
- blood test normal
So I was offered to have trachelectomy, which made me so so happy as I do not have children yet. And I am was not ready to lose my fertility at 35.
But during the operation they inspected lymph node in frozen sections and one signal lymph node appeared to have microscopic metastasis of CC.
All the inner looked good and my doctor says that normally cervics look like bulk when it come to CC. But mine was looking like I was 16 years old girl.... tears....tears....
So I had to have hormon cure to harvest the eggs, 6 very good eggs frozen. Hoping to find surrogate mother.
After all this I had to have chemorad. Started 1 march 2017 and finished 13 aprill. Lucky to say no side effects beside diahhorea started in week 3 and a bit tiredness. Till now did not use the dilators as doctors seem to be happy with my vagina not shortened or what so ever.
I had IMRT brachy as well, and there was always written - clinically tumor is not seen.
I was working all through the treatment and even between brachy days. Now I feel great, no pain just those thoughts in my mind which make me crazy....
I am looking here for those who are 5-6 years survivors and found some people like Naz and this made me so so happy.
Just had my doctors check-ups this week, all are happy with the results and reassure my that I am the lucky one to be caught this early...but it took my everything - my fertility....
The most thing I am afraid of is that cancer will come back. Been reading tons of articles and found that my 5 year survival rate is 35-65 % as I had cells in my lymph node.
And secondly afraid of lymphodema. Recently went back to gym, started golf on weekends.
But still wonder what I am allowed and not allowed to do. I love sun, but now I understand that I am not allowed to do it.
Please please long-term survivors tell at least some words that you are ok!