I've not been on the forum for a while - been trying to get on with life and put some of this stuff behind me. Not been easy to do that as I am hitting lots of first anniversaries of diagnosis and treatment around now and it's hard not to think back to this time last year.
Of course the other thing that has slightly thrown me off is developing lymphoedema in my left leg which feels like CC sticking two fingers up at me. Glad to be alive but this really sucks. It took a while but I finally had a proper lymphoedema assessment at the clinic this week (although I already had a diagnosis by my consultant) and I am getting a compression stocking next week, deep joy.
Anyway, re all this, I wanted to share some experience. I work for a small but caring organisation and when I spoke to HR about my leg and how sitting at my desk was making the swelling worse, they arranged for an Occupational Health nurse to come in to assess my workstation and working arrangements. It was very helpful and as a result I now have agreement that I can work flexibly and pop out for little walks during the day as sitting in one position all day makes it much worse. I still do my full hours and fit exercise in around meeting and things. This is in line with the employers obligation to make reasonable provision for us under the Equality Act (people who have had a cancer diagnosis are included in that).
The OH nurse also recommended a leg rest so I can elevate my leg and a more supportive chair so I don't end up aggravating my back by sitting with my leg up. The cost of the equipment she recommended came in at about £500 and the good news is that the cost of that has been covered by the government under the DWP Access to Work scheme. The process of getting the grant was pretty straightforward, particularly as I had an official assessment and my employer was already doing their part.
All of the details of the scheme are here https://www.gov.uk/access-to-work and it's worth noting that they will also help if you are self employed.
Hope thi is helpful - keep fighting the good fight everyone!