I was originally diagnosed with stage 1a1 cervical cancer in 2012 when I was 27. I was treated with a cone biopsy and top hat and sent on my way. 9 years later I discovered that it had been mis-staged and should have been stage 1b1 and I SHOULD have had more treatment. I now have stage 4 with mets in my pelvic region and bony invasion to my lower spine and femur. I’ve been NED for the past year after a gruelling regime of chemo and radiotherapy but there are signs I have pelvic relapse so I’m having a biopsy next week and will likely need a large vascular operation to cut away the cancer.
I feel incredibly lucky to have clear organs and truly believe that I’ll be around for a long time yet! I need to be as I have 9 year old twins.
I’d love to meet others of a similar age who have a similar diagnosis - there are lots of people out there but ideally they’d live close?
I’m treated privately as my husband has great healthcare through work - I count my blessings everyday for this and know this makes me hugely privileged. I don’t take this for granted.
Hope to chat soon!