I don't often post but I just wanted to share with all of you that today we’re launching our latest report: The long term consequences of cervical cancer and its treatment
It is the largest known dataset of women affected by cervical cancer and has uncovered far higher than anticipated numbers of women are affected by multiple, long term consequences of their treatment and many women are coping with these problems in silence.
- 88% have experienced at least one, 63% at least three and 24% at least six physical long term consequences of their cervical cancer treatment
- Worryingly high numbers said their emotional (75%) and physical (70%) needs had not been fully met
- Significant numbers affected by each physical problem had not spoken to a doctor, often putting up with difficulties including bone problems (64%), lymphoedema (60%), pain (44%) and urinary problems (42)
- Women reported simply accepting the conditions, being unsure of where to seek help, not wanting to bother anyone and being fearful of finding out what was wrong. Others reported being told there was nothing that could be done to help them.
- Mental health issues are significantly more prominent among young women, however across all ages the emotional and psychological impact of cervical cancer is being neglected
We are urging for greater recognition of the far reaching and long lasting problems a cervical cancer diagnosis and treatment can bring. In particular through the introduction of a national tariff for the long term consequences of cancer to ensure they are recognised as part of the post treatment care pathway and for the national metric of quality of life, currently being piloted for more common cancers, to be swiftly rolled out to less common cancers to ensure the needs of those living with and beyond cancer are not neglected.
Any help you can give with sending it to your contacts who may be interested would be fantastic, especially those who work in primary or secondary care. Also if you have Twitter and fancy sharing, here’s a tweet you could post:
New @JoTrust report reveals long term consequences of cervical cancer diagnosis and treatment https://www.jostrust.org.uk/longtermconsequences
Thank you as always for any support you can give the charity in getting this important infomation out there.