Amazing news Leahlouise! All clear! Fantastic!! I do hope the bowel issues start to resolve as your body heals xxx
Im thrilled for you!
Hi May, Iām sorry just seen thisā¦Congratulations, I am so so happy for youā¦You deserve this!! Lots of love xxx
Thank you lovely. How are you? Did you have your scans yet? Sending you much love.xx
Hi girls!
My story:
Nov 21-diagnosed with adenocarcinoma 1.1cm (biopsy); MRI confirmed cc 1b
Dec 21- started treatment: 5 weeks cisplatin, 28 external radiation, 3 brachyterapy
1feb 22 i finished treatment
11 april 22 my first MRI post treatment confirmed : NED
⦠but now iām worried because i struggle with something new: after brachy my vagina was very dry ( i understud itā s normal); but now ( by a month already) it is very moisturised ( almost all the time- whithout using any products).Itās like ovulation period all the time.
Is this normal? Do you have something like this?
I have noticed I can go from feeling things are dry - twingy irritated kind of feeling to feeling like things are almost well too damp? Naff explanation but im sure you get it. I notice the dryness particularly on the 1/2 days before im due to use my vaginal HRT. Im pretty sure that this all part of the menopause. But dont be frightned to contact your team or GP
Thanks Shammy. I just hope that adenocarcinoma is gone, that what i feel is not a sign of cancer.
Why would being āmoistā be a sign of cancer? Some moistness and discharge is normal, I am told - even a healthy vagina should have itās own lubrication. As it was adenocarcinoma there may be a bit of residual fluid that is leaking out? If you have started to use your dilators this also may make you more moist, as youāre using lubricant and stretching the tissues, which is good. Any worries though, sound out your CNS - itās what they are there for!
Thank you, Jakcs133.
I will speak with my doctors next week.
But is good to hear your experience.
You girls are amazing.
Yes, do. I got worried because I had a little clear discharge after starting dilators and the CNS said it was normal to have some discharge - a sign of a health vagina. Prior to the cancer treatment I was extremely dry, being on the other side of the menopause, and apart from when I started the pink discharge Iād had nothing at all for years. Apparently this was unusual and a sign of vaginal atrophy and dryness⦠But I did phone to check because we canāt help but worryā¦
Hello May. Thanks for asking, no I am due my scan at the beginning of June so just keeping fingers crossed. My 6 - 8 week check up was very encouraging though. Iāll keep you posted. Bye for now, hugs xxx
Hi Ana,
Itās definitely a lot of getting used to with our new normal particularly w our vagina. Mine is shorter although Iām hoping the dilators will help somehow I am patiently working on the dilators and was able to progressed to the biggest girth-wise but I still get discharge even pink blood stained discharge sometimes after the dilators. Iāve got quite scarring down there which the doctor confirmed and was advised to just keep at it and was told itās normal as everything down there is still healing and the discharge and even blood stained discharge is a sign of scarring breaking up and was told normal as well. I think given our circumstances itās good that youāre moist down there than feeling very dry. Sending you much love. xx
Thanks beautiful girls.
Today i was to see the doctor. It seems itās normal what i feel, my vagina is recovering.
So i am very happy cause iām Ned.
Fantastic news!!!
So I should be due my 6 month MRI around the 23rd of this month. Iāve not had any contact as of yet. I tried to ring my CNS. Sheās still on leave. Its been quite a while. I hope sheās ok however im getting frustrated. My GP closed early so I couldnāt check to see if any info was on my electronic notes.
Doesnāt help the anxiety levals
So ive managed to get a hold of someone lol! 6 month MRI is on Thursday 26th May, thats on the nose with timing thank goodness.
Scanxiety time again!
Shammy716 I wish you good luck on your MRI.
I hope it will be just fine.
Huggs!