Just diagnosed type 1a1 :(

Hi all,

 

Really sad to learn the news like this. 1 month ago i did a smear test, that showed cin 2 and cin 3, biopsy confirmed, had a loop operation, the analysis showed cancer 1a1 ...

 

It's tough emotionally: a doctor spoke immediately about hysterectomy, I'm 34 and have no children, and my husband and I just wanted to start planning them ...

 

 

There's an option of trachelectomy, waiting for MRI to confirm the diagnosis ... From reading this forum I also understand that the diagnosis can be upgraded to next stage ... So tough

 

 

 

Hi just to say I have had same diagnosis on Monday and so I know how you are feeling it's all so scary and upsetting. Big hugs. Xxx

 

Did consultant not mention option of 2nd lletz as well my consultant said it wouldn't be there first option but if I didn't have children they would do that.  My advice would be book to see your gp ask who is the best doctor to speak to they all have different specialisms. xx

Did consultant not mention option of 2nd lletz as well my consultant said it wouldn't be there first option but if I didn't have children they would do that.  My advice would be book to see your gp ask who is the best doctor to speak to they all have different specialisms. xx

Hi im awaiting my LLETZ results and just wanted to send you a big hug. Do you have a good support network that you can lean on? xx

As far as I understood - 2nd is not an option, as first one didn't have clear margins ... So as a result they will look into a possibility of removing cervix and lymph nodes. But i will ask as soon as i have scanner results

Thank you! My husband supports me a lot. My friends as well, but it's still very tough. I'm between two reactions at the same time: scared of dying and big regret of not making kids earlier .... Not talking about operation itself. Hasn't yet announced to my mother either :(

read attentively the paper for MRI - it says 1a2 actually :( but it seems to me that the doctor was saying 1a1 at the latest appointment...

Hi Ladies I was diagnosed with 1A1 in April & I'm now cancer free if you want to know anything just ask!

Good luck! 

Clare xxx

Hi LianaM, 

I know how you feel when you say you're split between two places.  A fear of the cancer itself and the 'why didn' t I start a family earlier'.  Sadly I'm staged at least 2b.  I say at least as like you some of my paperwork says 3b so I'm not 100% sure.  The Tracelectomy is not an option for me.  We've done what we can to preserve my ovaries so we'll see once this hell is over. I'll not be able to carry a pregnancy myself though so who knows.  I try every single day not to dwell on the what ifs.  The truth is we haven't started a family before now as we wanted our own home and to be ready.  Ironically we were just about there but I try not to dwell on that either.  I'd go mad otherwise. 

The thing with cervical cancer is that by it's very nature it throws 2 massive potentially life changing things at you at once.  Cancer and the prospect of infertility.  We've shelved the infertility as best we can for now.  I have to fight the cancer first before thinking about children in the future.  We know it's going to be hard to deal with later on but one at a time please. 

I know this is very much my take on things but i hope some of it is helpful.  Fingers crossed that Trachelectomy is the treatment option for you so you can go on and try for you family. 

Big hugs

Rachel x

Rachel you seem pretty amazing to be going through this, supporting others and maintaining a positive attitude. I really admire you.

 

Liana how long do you have to wait for your MRI? As rach said, dealing with two massive things at once is hard going x

I'm a bit like a swan to be honest.  Gliding serenely on the surface and paddling like an idiot underneath!  

Desperately needing to get this next week out of the way so I can put on my boxing gloves and start fighting this beast. 

Hope you learn your treatment options very soon. 

Rach x