Hello everyone, I’m new on the website although I have been browsing the forums for a couple of weeks before building the confidence to post on here. In October '15 I had my second routine cervical smear test, which the practice nurse stated that from looking at my cervix it may come back abnormal, which was fine. A couple of weeks later I received an appointment for a colposcopy, I attended and the specialist nurse was confident it was CIN 1 or CIN 2 and LLETZ + biopsy treatment was scheduled two weeks later (11/11/15).
Since the treatment I carried on my merry way believing that everything is now sorted and I will see them in six months time for check up, however to my surprise I received a call two weeks from the specialist nurse requesting for me to come in to the hospital urgently as the biopsy shown cancerous cells were present. I attended the appointment (27/11/15) the following day with a professor, throughout this time apprehensive about having another LLETZ treatment.
During the appointment the Prof. went through my history, discussed family and my profession. He then went on to tell me that I do have cervical cancer, however the type I have was extremely rare and I would require scans before I could be given a diagnosis and a treatment plan. No problem. I then went through a week of last minute MRI and CT scans.
9/12/15 I attended a ad hoc appointment with the Prof. and they located the tumour on the cervix (Stage 1b1) and a radical hysterectomy has been scheduled for 17/12/15. Both the macmillan nurse and Prof. have always stressed how rare it is and therefore the line of treatment will be different than for those with the ‘Common’ types of cervical cancer.
I’ve been quite positive about the situation, I mean from my own perspective there is no point in crying or having a woe is me moment as its really not going to change anything. So I continue to go to work and carry on as normal. I am very aware that my cancer only accounts for 5% of cervical cancer and is aggressive and prognosis isn’t great, although the Prof. won’t discuss prognosis with me at present, which is understandable.
My family and my husbands family have been very supportive and understanding, I haven’t told my eldest child and I can’t communicate it to the baby who is nearly 1 lol. However I would like to know if there is anyone out there or here lol who has had or has this type of cancer. For further insight or to share this journey with. My coping mechanism has been discussing it very occasionally however sometimes I feel not to discuss it as I believe that sometimes people are not able to cope or they are uncomfortable.
I’m fine, just worry about my husband and the mini me’s but I guess that is natural.
Well I hope to get a response even if its a pleasant hello :).
Happy weekend everybody xxxx