Having recently been diagnosed with CC and having undergone my MRI scan, I was informed by my Consultant on Friday that my tumour has caused hematometra (my menstrual flow is pooling in my uterus due to blockage). I have a few months worth of periods backed up :o( My Consultant was very surprised that I am not in a lot of pain!
My Consultant has been really good and arranged for me to undergo an operation tomorrow to have this issue sorted out.
Has anyone else experienced this; really just wondering what to expect as I can’t find much information or many details about the operation! Except that hematometra is most usually common in teenage girls who have an imperforated hymen, and that seems to be easily dealt with by an incision.
Hi Fiona :-)
I have never heard of this before, amazing what you can learn on this forum! :-)
It sounds as though the operation is very simple indeed. I was reading that this is usually treated with surgical cervical dilation.
Do you have a treatment plan in place yet? Do you know yet whether you will be having surgery or chemo-rads for your cancer?
Be lucky :-)
Thank you Tivoli, on Monday I found out that it wasn't Hemtometra at all but I was actually pregnant. My MRI scan showed what my Consultant thought was blood in my womb, but before my planned operation on Monday my urine sample was checked and came back as positive. This set my Consultant and Surgeon into a panic! and myself into shock! I was taken for an immediate ultrasound and it was confirmed that I was eleven weeks pregnant. The MRI scan result hadn't shown my baby was it was hiding behind the placenta, and it was the placenta and not blood which could be seen in the results.
I hadn't had a period since March, but this was when my post-coital bleeding began, so I had just put it down to that. I had no signs or symptons of being pregnant at all. I am on the pill and have never missed taking a tablet, I can only assume that the cancer had sent my hormones into overdrive.
I knew straightaway that I wouldn't be able to go ahead with the pregnancy; my Consultant explained the risks to my own health, and due to my having a loop diathermy two years ago it was doubtful I would ever go full term and there was the high risk of miscarriage and stillbirth. Also I had already undergone an x-ray and MRI scan which would've affected my baby.
Myself and my fiance knew that very sadly the only option was termination. The baby wasn't planned but had it been in different circumstances we would've without a doubt gone ahead with the pregnancy.
The termination was carried out yesterday, it was the worst day of my life - heartbreaking. I feel so cruel, and I feel so much guilt.
It was my one and only chance to have a baby and this horrible cruel cancer has taken that away from me.
I ma heartbroken, but I am receiving a lot of support. All the nursing staff, my Consultant, and the Surgeon have all been so caring and compassionate.
I am so sorry to read your news. What an awful time you are having right now.
I'm glad that you are surrounded by compassionate people who love you and can support you through such sad times.
Thinking of you and sending you much love,
I am so dreadfully sorry to read this. There's not much on this forum that reduces me to tears but this has.
Sending you lots and lots of love and hugs
Just wanted to check in and see how you are doing.
Thank you Tivoli.
It's certainly been an emotional rollercoster :o(
Thank you for the check in TeresaF, sorry I've not had chance to reply before now. It's been a very emotional time :o(
All planning now done and I start my treatment on Monday, I will be having twenty radiotherapy sessions, four chemotherapy sessions, and two brachytherapy sessions. I am dreading it, but just want to get it started and over done with.
Hi Fiona :-)
Well the small blessing here is that you seem to be on the same fast-track treatment that Philleepa was on with only four weeks of chemo-rads. most of us have five or more.
Sending you lots and lots of love
I was quite surprised myself that it was only four weeks, as from what have read it does seem to be usually five-six weeks.
I am dreading it all, but I just want to get it started and all over and done with so I can get back to being me again :o)
X hug x
So glad to see you back and with a plan in place for your treatment. There seems to be a ton of ladies on here who have had/are having a similar plan so there'll plenty of support for you.
Cheering you on sweetie,
love t x
Hi Fiona :-)
No need to dread it at all :-) it is nothing, NOTHING in comparison to what you have already been through.
Thank you TeresaF, it's so nice knowing you lovely ladies are out there and all helping each other.
I seem to feel better receiving advice and support from you lovely ladies on this fabulous forum who have already been through treatment or are going through treatment. I get a lot of love and support from my fiance, my sister, other family members, and friends, but I don't know anyone personally who has ever been diagnosed with CC so at times I do feel a little lost. I feel coming on the forum reading other ladies posts and stories helps put things more in to perspective for me, even though we will all have our own different experiences of dealing with things and going through treatment.
It's my last day at work today, so I am feeling a little emotional :o( I've told all my colleagues not to get too used to my absence as I will be back hopefully around early October!
FionaX hug X
Thank you for your reassurance Tivoli, I think it's just more fear of the unknown! I dreaded having the MRI scan (got myself in to a right mess at the time), but I was okay when I had the Planning Meeting/tattoo markers. It's all just part of the emotional rollercoster. My fiance seems to be finding the whole situation far more difficult to cope with than myself :o(
You're right it's certainly going to be nothing at all in comparison to what I've endured already; I've already gone through the most heartbreaking experience ever in my life . I am trying to try to stay positive and strong. I am determined not to be beaten, although today I am feeling a little emotional as it's my last day at work until treatment and recuperation is over (I should be back at work early October).
I think that the whole trip is actually far more scary for partners and parents than it is for the patient. They need huge amounts of support, reassurance and comfort. The whole concept of losing somebody that you love dearly is far, far worse than the concept of not making it through yourself. But you ARE going to make it through and you probably need to keep reassuring your family of that :-)
Be lucky :-)
Just thought I 'd jump in and wish you good luck with your treatment.
Thank you TeresaF, my first week is done, and today I start my second week. So far everything is going well, except for being very constipated!! I have a review with my Oncologist today, hopefully he can prescribed something to resolve this lol.