I'm new to this forum but figured it would be the best place to start.
I was diagnosed with a stage 1B2 adenocarcinoma in October last year, and was told that my tumour was too large to perform a radical hysterectomy, and so had to go the chemo-radiation route. This reduced the tumour to 1.3cm x 1cm and I was referred to the surgical unit, had an examination under anaesthetic - and my operation was booked for June 12th this year. A week before this, the operation was pulled as during the MDT, they noticed I also had an enlarged pelvic lymph node (left iliac node) and the surgeon told me I would have to go through more chemo to reduce the size of it - it was 1.1cm at this point - and then he would operate. After three cycles of Carboplatin (the first cycle was Taxol also, but on the second cycle I had an allergic reaction to the Taxol) my cc is 1x0.5cm and the node has shrunk to 0.6cm - but the surgeon still will not operate on me, and I've been advised to get a second opinion from either Janas Balega in Birmingham, or from the gynae surgeon at the Marsden where they are more proactive in surgery than the one I have at The Christie in Manchester.
I only get one shot at the second opinion, so was hoping someone on here has experience of Janas Balega at Birmingham or the team at the Marsden - or if anyone has had an Iliac node removed, who performed the operation?
I know that I'm still having treatment (three more cycles of Carboplatin) but I'm terrified that if I don't have the radical hysterectomy they've been telling me from day one that I need, that I'll just be on palliative care when these cycles end - I haven't a clue what else they can throw at me after this.
Thanks in advance -