Haven’t posted in a while because I didn’t want to just come on and moan, but I could really do with a bit of cheering up!
Yesterday was the halfway point of my treatment and so I know I should be celebrating, but I just feel so awful! My treatment started on Wednesday just over 2 weeks ago with chemo and radio and I basically started getting terrible nausea straight away. Just kept taking the tablets and planned to bring it up at my review the next Thursday. Well when that came around there was some kind of scheduling issue and no one could see me but by that point after chemo number 2 I was actually vomiting and unable to drink or eat anything.
At my hospital they have an Acute Oncology Service (not sure if they have it everywhere, but it’s a bit like A&E for people with cancer), so I took myself round there and after a bit of a wait they took bloods, set me up with fluids (as I was dehydrated by then) and then gave me a syringe driver with the antisickness medication in (ondansetron and metoclopramide). Since then I have been in AOS every weekday getting the syringe driver refilled/being reviewed, and then district nurses come at the weekend. I have had 3 episodes of non stop vomiting where I havent been able to drink for over 12 hours (including yesterday when I was back in again after chemo 3). They have upped the drugs, but i still feel sick all the time and now I have diarrhoea too which I’m not sure is radiotherapy related but rather from the metoclopramide. I have lost about 3kg and am basically living off rice crispies with oat milk. I keep trying to be positive thinking I have made it halfway but then at my review yesterday the radiotherapist just said that the second half is going to be way worse! It’s my 30th birthday on Sunday too and I’m going to be spending it sitting at home waiting for the D/N and I won’t even be able to sit around stuffing my face with Easter eggs because even the thought of that makes me want to chunder!
Any words of wisdom would be appreciated.